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Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers: Patient Perspectives (One-on-one Interviews)

This study has been completed.
Canadian Arthritis Network
Information provided by:
Sunnybrook Health Sciences Centre Identifier:
First received: January 26, 2009
Last updated: January 6, 2011
Last verified: January 2011
Inflammatory arthritis (IA) is a major cause of long-term disability. Due to specialist shortages, failure of primary care providers and individuals to recognize the disease, and lack of awareness of the importance of early intervention, delays to rheumatologic care are common. Peer support models have been used for various health issues and may be one method to assist individuals with early IA to manage their disease and cope with stress. Qualitative research methods (one-on-one interviews) will seek out feedback on a peer support approach and explore the learning needs (informational needs, educational preferences) and opinions about emotional and appraisal support of individuals living with IA, from the perspectives of patients. The data will be analyzed and expressed themes (articulated needs and understandings of interviewee context) will guide the future development of a peer support intervention.


Study Type: Observational
Official Title: Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers: Patient Perspectives (One-on-one Interviews)

Resource links provided by NLM:

Further study details as provided by Sunnybrook Health Sciences Centre:

Primary Outcome Measures:
  • learning needs (Informational needs and educational preferences) [ Time Frame: o months ]

Estimated Enrollment: 10
Study Start Date: January 2009
Study Completion Date: December 2009
Primary Completion Date: December 2009 (Final data collection date for primary outcome measure)
  Show Detailed Description


Ages Eligible for Study:   18 Years and older   (Adult, Senior)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Patients with inflammatory arthritis

Inclusion Criteria:

Patients for one-on-one interviews:

  1. Have a diagnosis of IA from a physician
  2. Able to participate in a 1 hour interview
  3. 18 years of age or older
  4. English-speaking
  5. Immigrants to Canada.
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its identifier: NCT00832949

Canada, Ontario
Sunnybrook Health Sciences Centre
Toronto, Ontario, Canada
Sponsors and Collaborators
Sunnybrook Health Sciences Centre
Canadian Arthritis Network
Principal Investigator: Mary J Bell, MD, FRCPC Sunnybrook Health Sciences Centre
  More Information

References 1. Badley EM. Emerging issues. In: Arthritis and Related Conditions in Ontario: ICES Research Atlas. 2nd ed. Toronto: Institute for Clinical Evaluative Sciences; 2004. 2. Badley EM, Rasooly I, Webster GK. Relative importance of musculoskeletal disorders as a cause of chronic health problems, disability and health care utilization: Findings from the 1990 ontario health survey. Journal of Rheumatology. 1994;3(21):505-14. 3. Badley EM, Webster GK, Rasooly I. The impact of musculoskeletal disorders in the population: Are they aches and pains? findings from the 1990 ontario health survey. Journal of Rheumatology. 1995;4(22):733-9. 4. Bell M. Peer to peer mentoring program: Summary of proposed research. In press 2008. 5. Superio-Cabuslay E, Ward MM, Lorig K. Patient education interventions in osteoarthritis and rheumatoid arthritis: A meta-analytic comparison with nonsteroidal anti-inflammatory drug treatment. Arthritis Care and Research. 1996;9:292-301. 6. Health Canada. Arthritis in canada. an ongoing challenge. Ottawa: Health Canada; 2003. 7. Dennis C. Peer support within a health care context: A concept analysis. International Journal of Nursing Studies. 2003;40:321-32. 8. Osborne RH, Jordan JE, Rogers A. A critical look at the role of self-management for people with arthritis and other chronic diseases. Nature Clinical Practice Rheumatology. 2008;4:224-5. 9. Jordan JM, Lawrence R, Kingston R, Fraser P, Karlson E, Lorig K. Ethnic health disparities in arthritis and musculoskeletal diseases. report of a scientific conference. Arthritis & Rheumatology. 2002;46(9):2280-6.

Responsible Party: Mary J Bell, Sunnybrook Health Sciences Centre Identifier: NCT00832949     History of Changes
Other Study ID Numbers: DOCH2 448-2008
Study First Received: January 26, 2009
Last Updated: January 6, 2011

Keywords provided by Sunnybrook Health Sciences Centre:
Mixed methods research (qualitative and quantitative)
Peer support
Early inflammatory arthritis
Patient education

Additional relevant MeSH terms:
Joint Diseases
Musculoskeletal Diseases processed this record on May 23, 2017