Satisfaction Survey for Amyotrophic Lateral Sclerosis (ALS) Patients Comparing Rooms With and Without Assistive Technology
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ClinicalTrials.gov Identifier: NCT00718107 |
Recruitment Status :
Terminated
(The study was discontinued due to low enrollment. A survey has been implemented in place of a formal study.)
First Posted : July 18, 2008
Last Update Posted : March 5, 2013
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The purpose of this study is :
- To assess the ALS patient's satisfaction related to a hospital stay on the neurology floor of Hahnemann Hospital.
- To compare the reported satisfaction of those individuals who stayed in a standard hospital room with those who stayed in Room 1455. Room 1455 is a room specifically set up with assistive technology related to environmental controls for individuals with disabilities.
- To look at frequency of use of the various pieces of adaptive equipment.
Condition or disease |
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Amyotrophic Lateral Sclerosis Neurodegenerative Disease Motor Neuron Disease |
Study Type : | Observational |
Actual Enrollment : | 5 participants |
Observational Model: | Case-Only |
Time Perspective: | Cross-Sectional |
Official Title: | Satisfaction Survey for ALS Patients Comparing Rooms With and Without Assistive Technology |
Study Start Date : | June 2005 |
Actual Primary Completion Date : | February 2012 |
Actual Study Completion Date : | February 2012 |

Group/Cohort |
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ALS
Subjects having either definite or probable ALS by El Escorial Criteria.
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- Patient Satisfaction [ Time Frame: Period of Hospital Stay ]Survey administered asks patients to rate their satisfaction with their hospital stay from Very Dissatisfied to Very Satisfied. Specific questions included satisfaction with hospital staff, quality of care, and comfort and accessibility of their room.

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Ages Eligible for Study: | 18 Years to 90 Years (Adult, Older Adult) |
Sexes Eligible for Study: | All |
Accepts Healthy Volunteers: | No |
Sampling Method: | Non-Probability Sample |
Inclusion Criteria:
- In-patients with probable or definite ALS, ages 18 - 90, staying on the neurology floor of Hahnemann Hospital
Exclusion Criteria:
- In-patients who do not meet the criteria of the diagnosis of ALS.

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00718107
United States, Pennsylvania | |
MDA/ALS Center of Hope | |
Philadelphia, Pennsylvania, United States, 19107 |
Responsible Party: | Drexel University College of Medicine |
ClinicalTrials.gov Identifier: | NCT00718107 |
Other Study ID Numbers: |
Internal-15894 |
First Posted: | July 18, 2008 Key Record Dates |
Last Update Posted: | March 5, 2013 |
Last Verified: | March 2013 |
Amyotrophic Lateral Sclerosis Cerebrospinal Fluid Neurodegenerative Disease Motor Neuron Disease |
Autonomic Nervous System Neurodegenerative Diseases Movement Disorders Quality of Life |
Motor Neuron Disease Amyotrophic Lateral Sclerosis Neurodegenerative Diseases Sclerosis Pathologic Processes Nervous System Diseases |
Neuromuscular Diseases Spinal Cord Diseases Central Nervous System Diseases TDP-43 Proteinopathies Proteostasis Deficiencies Metabolic Diseases |