ClinicalTrials.gov
ClinicalTrials.gov Menu

Turkish Version of The Measure of Processes of Care (MPOC)

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.
ClinicalTrials.gov Identifier: NCT03508583
Recruitment Status : Not yet recruiting
First Posted : April 26, 2018
Last Update Posted : April 27, 2018
Sponsor:
Information provided by (Responsible Party):
Duygu Turker, Hacettepe University

Brief Summary:
Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)

Condition or disease Intervention/treatment
Cerebral Palsy Muscular Dystrophies Autism Spectrum Disorder Traumatic Brain Injury Down Syndrome Disability, Developmental Disability Physical Other: Participation

Detailed Description:

The MPOC is a questionnaire designed to find out what parents of children with disabilities think of the services they and their children receive and how these services affect their psychosocial outcome. MPOC exists in two versions: the 56-item version was published in 1995 and the MPOC-20 in 2004. The20-item version was developed due to disadvantage of the longer version, because its completion can be very time consuming and the consequences of low respondent percentages . King and colleagues assert that the56-item MPOC is useful for research, while the MPOC-20 is better applied as a measure of parents' perceptions of the elements of FCS. The 20 items in the short version are distributed among the same five scales as in the MPOC-56. This ensures that the MPOC-56/20 captures aspects of care and services that have most importance for parents. The items are included in one of the following five scales:

1 Enabling and partnership; 2 Providing general information; 3 Providing specific information about the child; 4 Coordinated and comprehensive care; 5 Respectful and supportive care.

The Measure of Processes of Care for Service Providers (MPOC-SP) was developed to assess FCS from the perspective of professionals. The MPOC-SP has also been used in many different studies with different populations.


Study Type : Observational
Estimated Enrollment : 300 participants
Observational Model: Case-Only
Time Perspective: Prospective
Official Title: Validity and Reliability of Turkish Version of Turkish Version of The Measure of Processes of Care (MPOC 56-20- SP)
Estimated Study Start Date : May 1, 2018
Estimated Primary Completion Date : June 1, 2018
Estimated Study Completion Date : August 1, 2019

Resource links provided by the National Library of Medicine


Group/Cohort Intervention/treatment
Participation

Parents will complete the The Measure of Processes of Care 56- 20 (MPOC 56-20) questionary

Service providers will complete The Measure of Processes of Care for Service Providers (MPOC-SP)

Other: Participation

The mpoc 56 and mpoc 20 will be field-tested with a sample of 300 parents of children with disabilities residing in the Turkey.

Professionals working with children with disabilities will be assessed with MPOC SP questionnaires





Primary Outcome Measures :
  1. The Measure of Processes of Care (MPOC- 56) [ Time Frame: MPOC 56 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. ]
    Assessing of the participation level of children. The Measure of processes of care-56 (MPOC 56) will be applied for once for 300 participants. The MPOC consists of 56 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 56 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process.

  2. The Measure of Processes of Care 20 (MPOC- 20) [ Time Frame: MPOC 20 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. ]
    The measure of processes of care consists of 20 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 20 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process.

  3. The Measure of Processes of Care for services providers (MPOC- SP) [ Time Frame: MPOC SP was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. ]
    Self-assessment tool for pediatric service providers that measures the extent to which the services they provide are family-centred. The Measure of Processes of Care for Service Providers consists of 27 items categorized into four scales: (1) Showing Interpersonal Sensitivity (SIS), (2) Providing General Information (PGI), (3) Communicating Specific Information about the Child (CSI), and (4) Treating People Respectfully (TPR), .All response options are labelled, ranging from 1 ('never') to 7 ('to a great extent'). A higherscore reflects a more favourable judgement of the care process.


Secondary Outcome Measures :
  1. Child Health Questionnaire - Parent Form 50 [ Time Frame: At baseline] ]
    Assessing health-related quality of life of children



Information from the National Library of Medicine

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.


Ages Eligible for Study:   5 Years to 25 Years   (Child, Adult)
Sexes Eligible for Study:   All
Sampling Method:   Probability Sample
Study Population
The subjects will be recruited from children who lives in Turkey and, attend special education centers and hospitals.
Criteria

Inclusion Criteria:

  • To be diagnosed as disabilities and special needs
  • Pediatric service providers who agree to participate to study

Exclusion Criteria:

  • Children whose family didn't accept to participate to study

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT03508583


Contacts
Contact: Duygu Türker, PhD, pt +905304602723 duyguturker@yahoo.com
Contact: Cemil Özal, MSc, pt +905376054373 cemilozal@hotmail.com

Sponsors and Collaborators
Hacettepe University
Investigators
Study Chair: Mintaze Kerem Günel, prof.dr Hacettepe University

Publications:
Responsible Party: Duygu Turker, Principal Investigator, Hacettepe University
ClinicalTrials.gov Identifier: NCT03508583     History of Changes
Other Study ID Numbers: 46418926
First Posted: April 26, 2018    Key Record Dates
Last Update Posted: April 27, 2018
Last Verified: April 2018
Individual Participant Data (IPD) Sharing Statement:
Plan to Share IPD: Undecided

Studies a U.S. FDA-regulated Drug Product: No
Studies a U.S. FDA-regulated Device Product: No

Keywords provided by Duygu Turker, Hacettepe University:
mpoc
Validity and Reliability

Additional relevant MeSH terms:
Brain Injuries
Brain Injuries, Traumatic
Cerebral Palsy
Autism Spectrum Disorder
Muscular Dystrophies
Down Syndrome
Developmental Disabilities
Brain Diseases
Central Nervous System Diseases
Nervous System Diseases
Craniocerebral Trauma
Trauma, Nervous System
Wounds and Injuries
Brain Damage, Chronic
Child Development Disorders, Pervasive
Neurodevelopmental Disorders
Mental Disorders
Muscular Disorders, Atrophic
Muscular Diseases
Musculoskeletal Diseases
Neuromuscular Diseases
Genetic Diseases, Inborn
Intellectual Disability
Neurobehavioral Manifestations
Neurologic Manifestations
Abnormalities, Multiple
Congenital Abnormalities
Chromosome Disorders