Where Does Hope Fit In? The Relationship Between Hope, Uncertainty, and Coping Efficacy in Mothers of Children With Duchenne/Becker Muscular Dystrophy
|ClinicalTrials.gov Identifier: NCT02194725|
Recruitment Status : Completed
First Posted : July 18, 2014
Last Update Posted : July 11, 2017
- Children with Duchenne/Becker Muscular Dystrophy (DBMD) slowly lose muscle function. They usually die at a young age. Some mothers adapt to the demands of caring for a child with this disease better than others. Studies show that a person s hope may positively affect how they cope and adapt. Researchers want to find out more about this. They want to develop ways to improve caregivers overall wellness.
- To study the relationships between uncertainty, hope, and coping ability in mothers of children with DBMD.
- Women in the United States 18 years and older. They must be biological mothers of a living child with DBMD and be able to answer a survey in English.
- This study is part of a larger study that examines the well-being of mothers with sons who have DBMD.
- Participants will take a questionnaire. The questionnaire can be done on paper or on a computer. It will take 30 45 minutes to complete.
- The questionnaire will include basic demographic questions about the participant and the child. There will also be questions about how the participant copes with the stress and uncertainty of DBMD.
- For most of the questions, participants will rate their feelings on a scale. There will also be four open-ended questions.
|Condition or disease|
|Study Type :||Observational|
|Estimated Enrollment :||250 participants|
|Official Title:||Where Does Hope Fit In? The Relationship Between Hope, Uncertainty, and Coping Efficacy in Mothers of Children With Duchenne/Becker Muscular Dystrophy|
|Study Start Date :||July 6, 2014|
|Primary Completion Date :||April 20, 2015|
|Study Completion Date :||July 7, 2017|
- Coping Efficacy [ Time Frame: Current ]
- Uncertainty [ Time Frame: Current ]
- Adaptation [ Time Frame: Current ]
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT02194725
|United States, Maryland|
|National Human Genome Research Institute (NHGRI), 9000 Rockville Pike|
|Bethesda, Maryland, United States, 20892|
|Principal Investigator:||Barbara B Biesecker||National Human Genome Research Institute (NHGRI)|