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Cancer Survivor Registry: The Breast Cancer M.A.P. (Mind Affects the Physical) Project

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details.
 
ClinicalTrials.gov Identifier: NCT01295658
Recruitment Status : Completed
First Posted : February 14, 2011
Last Update Posted : June 7, 2019
Sponsor:
Information provided by (Responsible Party):
Linda House, RN, BSN, MSM, Cancer Support Community, Research and Training Institute, Philadelphia

Brief Summary:
Cancer Survivor Registry: The Breast Cancer M.A. P. (Mind Affects the Physical M.A.P.) Project to identify and help us understand the emotional and social needs of breast cancer survivors.

Condition or disease
Cancers

Detailed Description:
The Cancer Survivor Registry: The Breast Cancer M.A.P. (Mind Affects the Physical) Project was the first registry of its kind to look at the emotional and social needs of individuals diagnosed with breast cancer and track how their needs changed throughout their cancer journey. Data will raise awareness and help develop programs to address the needs of breast cancer survivors. Findings from the Registry are disseminated online at www.CancerSupportCommunity.org/RegistryIndexReport2017

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Study Type : Observational
Actual Enrollment : 3729 participants
Observational Model: Case-Only
Time Perspective: Cross-Sectional
Official Title: Cancer Survivor Registry: The Breast Cancer M.A.P. (Mind Affects the Physical) Project
Actual Study Start Date : May 2010
Actual Primary Completion Date : March 2013
Actual Study Completion Date : March 2013

Resource links provided by the National Library of Medicine


Group/Cohort
Cancer Survivors

This is a broad observational study conducted online at www.cancerexperienceregistry.org, or via pen and paper survey obtained by calling the cancer support helpline at 888-793-9355

Any individual who has ever received a cancer diagnosis, regardless of disease type, stage, treatment, and time since diagnosis, can take part in this study.




Primary Outcome Measures :
  1. Self-reported quality of life measures [ Time Frame: 4 weeks ]


Information from the National Library of Medicine

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Ages Eligible for Study:   18 Years and older   (Adult, Older Adult)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   Yes
Sampling Method:   Non-Probability Sample
Study Population
Any individual who has received a cancer diagnosis.
Criteria

Inclusion Criteria:

  • Having received a cancer diagnosis

Exclusion Criteria:

  • None

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT01295658


Locations
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United States, Pennsylvania
Cancer Support Community Research & Training Institute
Philadelphia, Pennsylvania, United States, 19131
Sponsors and Collaborators
Cancer Support Community, Research and Training Institute, Philadelphia
Investigators
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Principal Investigator: Julie Olson, PhD Cancer Support Community

Additional Information:
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Responsible Party: Linda House, RN, BSN, MSM, President, Cancer Support Community, Cancer Support Community, Research and Training Institute, Philadelphia
ClinicalTrials.gov Identifier: NCT01295658     History of Changes
Other Study ID Numbers: CSC-MAP-0102
First Posted: February 14, 2011    Key Record Dates
Last Update Posted: June 7, 2019
Last Verified: June 2019
Keywords provided by Linda House, RN, BSN, MSM, Cancer Support Community, Research and Training Institute, Philadelphia:
cancer
cancer survivorship
psychosocial needs
cancer experience
metastatic breast cancer
breast cancer
caregiver
Additional relevant MeSH terms:
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Breast Neoplasms
Neoplasms by Site
Neoplasms
Breast Diseases
Skin Diseases