Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome

The recruitment status of this study is unknown because the information has not been verified recently.
Verified December 2008 by Taichung Veterans General Hospital.
Recruitment status was  Not yet recruiting
Information provided by:
Taichung Veterans General Hospital
ClinicalTrials.gov Identifier:
First received: December 15, 2008
Last updated: NA
Last verified: December 2008
History: No changes posted
Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention

Condition Intervention
Prader-Willi Syndrome
Other: counseling, emotional support
Other: emotional support

Study Type: Observational
Study Design: Observational Model: Case-Only
Time Perspective: Retrospective

Resource links provided by NLM:

Further study details as provided by Taichung Veterans General Hospital:

Primary Outcome Measures:
  • experience [ Time Frame: one year ] [ Designated as safety issue: No ]

Estimated Enrollment: 8
Study Start Date: December 2008
Estimated Study Completion Date: December 2009
Estimated Primary Completion Date: February 2009 (Final data collection date for primary outcome measure)
Groups/Cohorts Assigned Interventions
Lifestyle counseling Other: counseling, emotional support Other: emotional support
emotional support during the interview
Other: emotional support
emotional supporting during the interview


Ages Eligible for Study:   6 Years to 12 Years
Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
a person who care and live with childre with Prader-Willi syndrome

Inclusion Criteria:

  • a person who care and live with children with Prader-Willi syndrome

Exclusion Criteria:

  • siblings or less-contact family
  • teachers
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its ClinicalTrials.gov identifier: NCT00808548

Taichung Veterans General Hospital Not yet recruiting
Taichung, Taiwan, 40707
Contact: shu chien    04-25392525 ext 5938    shuch@vghtc.gov.tw   
Sponsors and Collaborators
Taichung Veterans General Hospital
  More Information

Responsible Party: shu chien, Taichung Veterans General Hospital
ClinicalTrials.gov Identifier: NCT00808548     History of Changes
Other Study ID Numbers: C08169 
Study First Received: December 15, 2008
Last Updated: December 15, 2008
Health Authority: Taiwan: Department of Health

Keywords provided by Taichung Veterans General Hospital:
carer's experiences
Prader-willi syndrome
personal experiences

Additional relevant MeSH terms:
Prader-Willi Syndrome
Abnormalities, Multiple
Chromosome Disorders
Congenital Abnormalities
Genetic Diseases, Inborn
Intellectual Disability
Nervous System Diseases
Neurobehavioral Manifestations
Neurologic Manifestations
Nutrition Disorders

ClinicalTrials.gov processed this record on May 23, 2016