The Communication of Genetic Risk to Adolescent Daughters of Women With Breast Cancer
|The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details.|
|ClinicalTrials.gov Identifier: NCT00588705|
Recruitment Status : Completed
First Posted : January 8, 2008
Last Update Posted : January 30, 2017
The purpose of this study is to first understand how MSKCC Clinical Genetics Service doctors talk to women with breast cancer about any genetic risks they might carry, and if they help women to think about what they might say, in turn, to their relatives, especially their daughters.
A second part of the study asks women for their opinions about when and how their daughters should be told about any genetic risks.
All of this will help us develop teaching methods to help our doctors improve the way they talk about genetic risk when women with breast cancer have adolescent daughters.
|Condition or disease||Intervention/treatment|
|Breast Cancer Counseling||Behavioral: focus group & questionaire|
|Study Type :||Observational|
|Actual Enrollment :||27 participants|
|Official Title:||The Communication of Genetic Risk to Adolescent Daughters of Women With Breast Cancer|
|Study Start Date :||December 2007|
|Actual Primary Completion Date :||January 2017|
|Actual Study Completion Date :||January 2017|
focus group & questionaire
The group will discuss its views about how and when to talk about the risk of getting breast cancer. The focus group will be video recorded and the video recorded material will be later transcribed and carefully analyzed. In addition you will be asked to answer questions about yourself, such as education and marital status.
Behavioral: focus group & questionaire
The focus group will last about 90 minutes. However, your involvement in this study will last from the time you join until you read over the summary of what happened during the focus group and return your comments. This should be approximately 2 months. Patient will complete a questionnaire and we estimate total time for completion to be approximately 7 minutes.
- Is a demonstration of the effectiveness of the module in changing the behavior of clinicians after taking part in the communication skills module. [ Time Frame: conclusion of study ]
- To examine the views of women about the provision of genetic risk information to their daughters. [ Time Frame: conclusion of study ]
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00588705
|United States, New York|
|Memorial Sloan-Kettering Cancer Center|
|New York, New York, United States, 10065|
|Principal Investigator:||Smita Banerjee, PhD||Memorial Sloan Kettering Cancer Center|