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GNE-Myopathy Disease Monitoring Program (GNEM-DMP): A Registry and Prospective Observational Natural History Study to Assess GNE Myopathy or Hereditary Inclusion Body Myopathy (HIBM)

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details. Identifier: NCT01784679
Recruitment Status : Completed
First Posted : February 6, 2013
Last Update Posted : March 5, 2018
Newcastle University
Information provided by (Responsible Party):
Ultragenyx Pharmaceutical Inc

No Study Results Posted on for this Study
  Recruitment Status : Completed
  Primary Completion Date : November 30, 2017
  Study Completion Date : November 30, 2017