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The National Amyotrophic Lateral Sclerosis Registry

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ClinicalTrials.gov Identifier: NCT01772602
Recruitment Status : Recruiting
First Posted : January 21, 2013
Last Update Posted : February 14, 2018
Sponsor:
Collaborators:
VA Office of Research and Development
Centers for Medicare and Medicaid Services
Information provided by (Responsible Party):
Centers for Disease Control and Prevention

January 17, 2013
January 21, 2013
February 14, 2018
October 2010
December 2022   (Final data collection date for primary outcome measure)
The National Amyotrophic Lateral Sclerosis (ALS) Registry [ Time Frame: 1 year ]
To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US.
The National Amyotrophic Lateral Sclerosis (ALS) Registry [ Time Frame: ongoing ]
To determine the incidence and prevalence of Amyotrophic Lateral Sclerosis in the US.
Complete list of historical versions of study NCT01772602 on ClinicalTrials.gov Archive Site
Risk factors of ALS [ Time Frame: 1 year ]
To learn more about the potential risk factors for ALS
Not Provided
Not Provided
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The National Amyotrophic Lateral Sclerosis Registry
The National Amyotrophic Lateral Sclerosis Registry
The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
The National ALS Registry's Research Notification System allows person with ALS to participate in clinical trials.
Observational [Patient Registry]
Observational Model: Other
Time Perspective: Other
5 Years
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Non-Probability Sample
ALS cases in the United States
Amyotrophic Lateral Sclerosis
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Not Provided
Not Provided

*   Includes publications given by the data provider as well as publications identified by ClinicalTrials.gov Identifier (NCT Number) in Medline.
 
Recruiting
16000
4884
December 2022
December 2022   (Final data collection date for primary outcome measure)

Inclusion Criteria:

- U.S. citizens 18 years of age or older

Exclusion Criteria:

Sexes Eligible for Study: All
18 Years and older   (Adult, Older Adult)
No
Contact: Paul Mehta, MD 770-488-0556 PMehta1@cdc.gov
Contact: Kevin Horton, DrPH, MSPH 770-488-1555 dhorton@cdc.gov
United States
 
 
NCT01772602
CDC-NCEH/ATSDR-5768
No
Not Provided
Not Provided
Centers for Disease Control and Prevention
Centers for Disease Control and Prevention
  • VA Office of Research and Development
  • Centers for Medicare and Medicaid Services
Principal Investigator: Paul Mehta, MD Centers for Disease Control and Prevention
Centers for Disease Control and Prevention
January 2018