Trial record 1 of 2 for:    The Worldwide Sarcoidosis Research Study
Previous Study | Return to List | Next Study

Worldwide Sarcoidosis Research Study (WISE)

This study is currently recruiting participants. (see Contacts and Locations)
Verified May 2015 by University of Iowa
Information provided by (Responsible Party):
Alicia Gerke, University of Iowa Identifier:
First received: May 31, 2012
Last updated: May 27, 2015
Last verified: May 2015

May 31, 2012
May 27, 2015
December 2011
January 2017   (final data collection date for primary outcome measure)
Define and characterize sarcoidosis phenotypes and methods of care [ Time Frame: Anticipated by 2017 ] [ Designated as safety issue: No ]
To give a broader and less biased view of sarcoidosis
Not Provided
Complete list of historical versions of study NCT01610843 on Archive Site
Not Provided
Not Provided
Not Provided
Not Provided
Worldwide Sarcoidosis Research Study
Worldwide Sarcoidosis Research Study

The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.

The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.

Not Provided
Observational Model: Cohort
Time Perspective: Prospective
Not Provided
Retention:   Samples With DNA

Saliva samples will be collected and processed at the University of Iowa.

Non-Probability Sample

Individuals diagnosed with sarcoidosis who have a computer with Internet access.

Not Provided
Not Provided

*   Includes publications given by the data provider as well as publications identified by Identifier (NCT Number) in Medline.
Not Provided
January 2017   (final data collection date for primary outcome measure)

Inclusion Criteria:

  • Diagnosis of Sarcoidosis
  • Access to a computer with Internet

Exclusion Criteria:

  • None
18 Years and older
Contact: Alicia K Gerke, MD 319-356-1869
Contact: Emily K Phillips, BSN 319-356-1869
United States
200907757, 5UL1RR024979
Alicia Gerke, University of Iowa
University of Iowa
National Center for Research Resources (NCRR)
Principal Investigator: Alicia K Gerke, MD University of Iowa
University of Iowa
May 2015

ICMJE     Data element required by the International Committee of Medical Journal Editors and the World Health Organization ICTRP