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Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia

This study is currently recruiting participants.
Verified August 2008 by Imperial College London
Sponsor:
ClinicalTrials.gov Identifier:
NCT00230685
First Posted: October 3, 2005
Last Update Posted: May 29, 2015
The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.
Collaborator:
The Margaret Hayton HHT Fund
Information provided by (Responsible Party):
Imperial College London
September 29, 2005
October 3, 2005
May 29, 2015
January 2000
January 2018   (Final data collection date for primary outcome measure)
  • Stroke [ Time Frame: Prospective ]
  • Venous thromboemboli (VTE) [ Time Frame: Prospective ]
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Complete list of historical versions of study NCT00230685 on ClinicalTrials.gov Archive Site
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Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia
Hammersmith Hospital Patients With Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Haemorrhagic Telangiectasia
The Hammersmith Hospital provides a clinical service for patients with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that is unique in the United Kingdom. Measurements obtained as part of standard clinical practice that has evolved since 1985 allow us to assess whether particular groups of individuals that we see are more prone to recognised complications such as strokes, brain abscesses, pregnancy related complications or pulmonary hypertension. We hypothesise that certain clinical characteristics will predict the susceptibility of individuals to particular complications.
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Observational
Observational Model: Cohort
Time Perspective: Prospective
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Non-Probability Sample
Patients referred to the hereditary haemorrhagic telangiectasia clinical service at Hammersmith Hospital, imperial College Healthcare NHS Trust
Telangiectasia, Hereditary Hemorrhagic
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*   Includes publications given by the data provider as well as publications identified by ClinicalTrials.gov Identifier (NCT Number) in Medline.
 
Recruiting
500
January 2018
January 2018   (Final data collection date for primary outcome measure)

Inclusion Criteria:

  • Patients attending Hammersmith Hospital

Exclusion Criteria:

Sexes Eligible for Study: All
Child, Adult, Senior
No
Contact: Claire L Shovlin 0208 383 1000 c.shovlin@imperial.ac.uk
United Kingdom
 
 
NCT00230685
IC/CLS2
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Imperial College London
Imperial College London
The Margaret Hayton HHT Fund
Principal Investigator: Claire L Shovlin Imperial College London
Imperial College London
August 2008