A Prospective Study of the Disease Characteristics of Adult Patients With Long Chain Fatty Acid Oxidation Disorders (FORWARD)
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The purpose of the study is to collect information on disease characteristics from adult patients diagnosed with fatty acid oxidation disorders.
Condition or disease
Fatty Acid Oxidation Disorder
In this study there will be no drug intervention. The study will include a Baseline visit and a follow up visit scheduled at Month 4. At these visits medical history, safety assessments, concomitant medications, exercise tests and quality of life questionnaire data will be collected.
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Layout table for eligibility information
Ages Eligible for Study:
18 Years and older (Adult, Older Adult)
Sexes Eligible for Study:
Accepts Healthy Volunteers:
Patients will be recruited from centres experienced in the identification and subsequent management of patients LC-FAOD.
A diagnosis of one of the following genetically confirmed: