Decision Making and Implementation of Aging-in-Place/Long Term Care Plans Among Older Adults
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ClinicalTrials.gov Identifier: NCT03960476 |
Recruitment Status :
Active, not recruiting
First Posted : May 23, 2019
Last Update Posted : January 21, 2022
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Condition or disease | Intervention/treatment | Phase |
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Alzheimer Disease Mild Cognitive Impairment | Behavioral: PlanYourLifespan.org | Not Applicable |
Study Type : | Interventional (Clinical Trial) |
Actual Enrollment : | 293 participants |
Allocation: | N/A |
Intervention Model: | Single Group Assignment |
Intervention Model Description: | All study participants receive access to the web-based study intervention, PlanYourLifespan.org. |
Masking: | None (Open Label) |
Primary Purpose: | Health Services Research |
Official Title: | Decision Making and Implementation of Aging-in-Place/Long Term Care Plans Among Older Adults |
Actual Study Start Date : | January 13, 2020 |
Estimated Primary Completion Date : | August 30, 2023 |
Estimated Study Completion Date : | February 29, 2024 |

Arm | Intervention/treatment |
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Experimental: Access to Web-Based Intervention
All study participants will be given access to the web-based study intervention, PlanYourLifespan.org.
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Behavioral: PlanYourLifespan.org
The study intervention is a web-based planning tool, PlanYourLifespan.org |
- Change in long-term care plan decision-making [ Time Frame: Change from baseline decision-making at 36 months. Will also be measured every six months, up to 42 months. ]Change in participant's long-term care plan decision-making from baseline to 36 months post-baseline. Decision-making will be measured as a binary ('yes', 'no') outcome at each time-point.
- Participant utilization of long-term care services [ Time Frame: Baseline and every six months, up to 42 months ]Participant utilization of long-term care services such as in-home caregivers as measured by the Resource Use Inventory (Sano M, Zhu CW, Whitehouse PJ, et al. ADCS Prevention Instrument Project: pharmacoeconomics: assessing health-related resource use among healthy elderly. Alzheimer Dis Assoc Disord. 2006;20(4 Suppl 3):S191-S202. doi:10.1097/01.wad.0000213875.63171.87).
- Number of participants that implement any of their long-term care plans [ Time Frame: Baseline and every six months, up to 42 months ]The number of participants that implement any long-term care plans they have set. This will be measured as a binary ('yes', 'no') outcome at each time-point.
- Participant long-term care goal concordance [ Time Frame: Baseline and every six months, up to 42 months ]Assess whether participant's long-term care plans are carried out in accordance to their goals. This will be measured as a binary ('yes', 'no') outcome at each time-point.

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.
Ages Eligible for Study: | 55 Years and older (Adult, Older Adult) |
Sexes Eligible for Study: | All |
Accepts Healthy Volunteers: | No |
Inclusion Criteria:
- Current participant in the LitCog Trial [R01AG03611]
- English-speaking
- Community-dwelling
- Currently use a computer or tablet with internet
Exclusion Criteria:
- Previous participation in the Advanced Planning for Home Services study [IH-12-11-4259]

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT03960476
United States, Illinois | |
Northwestern University | |
Chicago, Illinois, United States, 60611 |
Responsible Party: | Lee Lindquist, Associate Professor of Medicine, Section Chief - Geriatrics, Northwestern University |
ClinicalTrials.gov Identifier: | NCT03960476 |
Other Study ID Numbers: |
R01AG058777 ( U.S. NIH Grant/Contract ) 1R01AG058777-01A1 ( U.S. NIH Grant/Contract ) |
First Posted: | May 23, 2019 Key Record Dates |
Last Update Posted: | January 21, 2022 |
Last Verified: | January 2022 |
Individual Participant Data (IPD) Sharing Statement: | |
Plan to Share IPD: | No |
Studies a U.S. FDA-regulated Drug Product: | No |
Studies a U.S. FDA-regulated Device Product: | No |
Alzheimer Disease Cognitive Dysfunction Dementia Brain Diseases Central Nervous System Diseases Nervous System Diseases |
Tauopathies Neurodegenerative Diseases Neurocognitive Disorders Mental Disorders Cognition Disorders |