Angelman & Rett Syndrome: Interaction and Communication
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|ClinicalTrials.gov Identifier: NCT03720028|
Recruitment Status : Unknown
Verified October 2018 by Universitaire Ziekenhuizen Leuven.
Recruitment status was: Not yet recruiting
First Posted : October 25, 2018
Last Update Posted : October 25, 2018
|Condition or disease||Intervention/treatment|
|Behavior, Child Parent-Child Relations Communication||Behavioral: Observation Behavioral: Parental experiences|
|Study Type :||Observational|
|Estimated Enrollment :||20 participants|
|Official Title:||Parent-child Interaction and Communication in Families Who Have a Child With Rett Syndrome or Angelman Syndrome|
|Estimated Study Start Date :||December 1, 2018|
|Estimated Primary Completion Date :||October 1, 2020|
|Estimated Study Completion Date :||October 1, 2020|
Child w Angelman/Rett syndrome
Children with Angelman or Rett syndrome, up to 14 years of age
Describe communication and sensory profile using standardized tests and observations.
Parents of Children with Angelman or Rett syndrome
Behavioral: Parental experiences
Survey parents' experiences with parent-child interaction and augmentative and alternative communication.
- Communication profile [ Time Frame: 1 day One-time measurement ]Scores on language tests
- Parent interaction [ Time Frame: 1 day One-time measurement ]Scores on social tests
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT03720028
|Katholieke Universiteit Leuven|
|Leuven, Vlaams-Brabant, Belgium, 3000|