The Impact of Pediatric Skin Disorders: The "Big" Study
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This study leverages the availability of a validated series of instruments to measure the effect of highly visible, chronic skin disorders, including atopic dermatitis (AD), on patients 8 years of age and above in causing stigma and psychiatric issues, particularly anxiety and depression.
Condition or disease
Chronic Pediatric Skin Conditions
This is a multi center study with Northwestern University/Lurie Children's Hospital serving as the Data Coordinating Center. Site selection has been completed through members of PeDRA.
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Layout table for eligibility information
Ages Eligible for Study:
8 Years to 17 Years (Child)
Sexes Eligible for Study:
Accepts Healthy Volunteers:
3,500 parent/child dyads across all sites (at least 50 parent/child dyads at each site).
Subjects must be aged 8-17 years of age
Subject must be diagnosed with a chronic skin disease deemed to be severe enough and/or in a visible location that could be stigmatizing as determined by the study doctor
Subject and parent must both be English speaking with at least one parent/guardian who will complete the questionnaires
Subject and Parent/Guardian must be able to complete the relevant questionnaires
Children under 8 years of age
Children with developmental delay and/or a behavioral disorder that would preclude participation in form completion
Children with a non-cutaneous disorder that is considered by the Study doctor to be stigmatizing