Pancreatic Cancer Registry: For Any Person With a Personal or Family History (NFPTR)
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The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details. |
ClinicalTrials.gov Identifier: NCT02886247 |
Recruitment Status :
Recruiting
First Posted : September 1, 2016
Last Update Posted : December 1, 2020
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Condition or disease |
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Pancreatic Cancer, ATM, BRCA, Hereditary Cancer |
Study Type : | Observational |
Estimated Enrollment : | 12000 participants |
Observational Model: | Family-Based |
Time Perspective: | Prospective |
Official Title: | National Familial Pancreas Tumor Registry |
Study Start Date : | June 1994 |
Estimated Primary Completion Date : | June 2022 |
Estimated Study Completion Date : | December 2022 |

Group/Cohort |
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participants
individuals with a personal or family history of pancreas tumors
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- pancreatic cancer [ Time Frame: 25 years ]
Biospecimen Retention: Samples With DNA

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.
Ages Eligible for Study: | 18 Years and older (Adult, Older Adult) |
Sexes Eligible for Study: | All |
Accepts Healthy Volunteers: | Yes |
Sampling Method: | Non-Probability Sample |
Inclusion Criteria:
- personal or family history of pancreas tumors
Exclusion Criteria:
- none

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT02886247
Contact: Alison Klein, PhD, MHS | 410-955-3502 | pancreas@jhmi.edu |
United States, Maryland | |
Johns Hopkins Hospital | Recruiting |
Baltimore, Maryland, United States, 21231 | |
Contact: Alison Klein, PhD, MHS 410-955-3511 aklein1@jhmi.edu | |
Contact pancreas@jhmi.edu |
Principal Investigator: | Alison Klein, PhD, MHS | Johns Hopkins University |
Responsible Party: | Johns Hopkins University |
ClinicalTrials.gov Identifier: | NCT02886247 |
Other Study ID Numbers: |
NA_00035453 P50CA062924 ( U.S. NIH Grant/Contract ) |
First Posted: | September 1, 2016 Key Record Dates |
Last Update Posted: | December 1, 2020 |
Last Verified: | November 2020 |
Pancreatic Neoplasms Digestive System Neoplasms Neoplasms by Site Neoplasms |
Endocrine Gland Neoplasms Digestive System Diseases Pancreatic Diseases Endocrine System Diseases |