Costs of Care and Adherence to Treatment for Cystic Fibrosis (COMURA MUCOBS)
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Evolution of medical care for patients with cystic fibrosis appeared in recent years: prolongation of life expectancy with consequently increased comorbidities and the use of lung transplantation, systematic neonatal screening of new born since 2002, prescription of expensive new molecules or new presentation. This evolution justifies to realize an update of statistics of costs of care and to assess adherence to treatment
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Ages Eligible for Study:
up to 99 Years (Child, Adult, Older Adult)
Sexes Eligible for Study:
Accepts Healthy Volunteers:
Patients with cystic fibrosis living in Rhône-Alpes region
Patients with cystic fibrosis,
Followed by one of the cystic fibrosis center of the Rhône-Alpes region (pediatric and adult of Lyon and Grenoble)
Affiliated to the general scheme of health insurance,