COPD Patient-Powered Research Network (COPD PPRN)
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The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details. |
ClinicalTrials.gov Identifier: NCT02803242 |
Recruitment Status :
Recruiting
First Posted : June 16, 2016
Last Update Posted : March 10, 2022
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Condition or disease | Intervention/treatment |
---|---|
Chronic Obstructive Pulmonary Disorder Chronic Obstructive Lung Disease Emphysema Chronic Bronchitis | Other: Patient Reported Outcomes |
Study Type : | Observational [Patient Registry] |
Estimated Enrollment : | 75000 participants |
Observational Model: | Cohort |
Time Perspective: | Other |
Target Follow-Up Duration: | 15 Years |
Official Title: | COPD Patient-Powered Research Network |
Study Start Date : | August 2014 |
Estimated Primary Completion Date : | January 2025 |
Estimated Study Completion Date : | January 2030 |
- Other: Patient Reported Outcomes
Other Name: Patient reported outcomes will be collected using self-report questionnaires to asses lung health status
- Patient Reported Outcome Measurement Information System-29 (PROMIS-29) [ Time Frame: 15 years ]
- COPD Assessment Test (CAT) [ Time Frame: 15 years ]
- Modified Medical Research Council (MMRC) Dyspnea Scale [ Time Frame: 15 years ]
- Charlson Comorbidity Index (CCI) [ Time Frame: 15 years ]

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.
Ages Eligible for Study: | 18 Years and older (Adult, Older Adult) |
Sexes Eligible for Study: | All |
Accepts Healthy Volunteers: | Yes |
Sampling Method: | Non-Probability Sample |
Inclusion Criteria:
- 18 years or older that says yes to one of the following:
- COPD diagnosis
- Current or former smoker
- Family history of respiratory disease
- Symptomatic of respiratory disease
Exclusion Criteria:
- Non-English speaking

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT02803242
Contact: Gretchen M McCreary, MA | 866-731-2673 ext 396 | gmccreary@copdfoundation.org | |
Contact: Elisha Malanga | 866-731-2673 ext 309 | emalanga@copdfoundation.org |
United States, District of Columbia | |
COPD Foundation | Recruiting |
Washington, District of Columbia, United States, 20001 | |
Contact: Gretchen M McCreary, MA 866-731-2673 ext 396 gmccreary@copdfoundation.org |
Responsible Party: | COPD Foundation |
ClinicalTrials.gov Identifier: | NCT02803242 |
Other Study ID Numbers: |
COPDPPRN |
First Posted: | June 16, 2016 Key Record Dates |
Last Update Posted: | March 10, 2022 |
Last Verified: | March 2022 |
copd emphysema bronchitis bronchiectasis |
Bronchitis Bronchitis, Chronic Lung Diseases Pulmonary Emphysema Lung Diseases, Obstructive Pulmonary Disease, Chronic Obstructive |
Emphysema Respiratory Tract Diseases Pathologic Processes Respiratory Tract Infections Infections Bronchial Diseases |