iConquerMS™ - A Patient-Powered Research Network for Multiple Sclerosis (iCMS)
|The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.|
|ClinicalTrials.gov Identifier: NCT02486562|
Recruitment Status : Recruiting
First Posted : July 1, 2015
Last Update Posted : July 5, 2019
|Condition or disease|
The purpose of this study is to create a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) that includes at least 20,000 people with multiple sclerosis (MS) who contribute data on their health and other topics. Survey data will be made available to research scientists who are studying MS and similar diseases. Our goal is to use this data to answer questions that researchers and people with MS have regarding the disease, including its causes, treatments, and other topics.
The MS-PPRN will be part of a national network for conducting research called PCORnet, the National Patient-Centered Clinical Research Network. PCORnet is supported by the Patient-Centered Outcomes Research Institute (PCORI). As the MS-PPRN is part of PCORnet, the data collected in surveys you complete may also be shared with researchers studying other diseases within the PCORnet network.
While the MS-PPRN is focused on enrolling people with MS, people without MS are also welcome to participate in this research study.
This study will be conducted online via the iConquerMS.org website. This is an ongoing study and will last for an indefinite period of time.
|Study Type :||Observational|
|Estimated Enrollment :||20000 participants|
|Study Start Date :||November 2014|
|Estimated Primary Completion Date :||October 2026|
|People diagnosed with Multiple Sclerosis|
- Number of people with multiple sclerosis who experience health-related quality-of-life changes [ Time Frame: 1 year ]
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT02486562
|Contact: Sara Loud, MSEE, MBAemail@example.com|
|United States, Massachusetts|
|Accelerated Cure Project||Recruiting|
|Waltham, Massachusetts, United States, 02451|
|Contact: Sara Loud, MS, MSEE 781-487-0032 firstname.lastname@example.org|