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The purpose of this study is to better understand why children with short gut develop feeding problems.
Condition or disease
Short Bowel SyndromeIntestinal FailureHome Parenteral Nutrition
We seek to identify characteristics of our patients' histories that are associated with feeding problems in the context of availability of early prophylactic occupational therapy. We plan to review our most recent four years' experience in children with short gut syndrome with onset in early infancy who initially required home parenteral nutrition to identify risk factors or clusters of risk factors associated with food aversion.
Data will be reviewed starting at the patient's birth. We will only be looking at patients who have been seen in the clinic since July 1, 2008; some of these will have medical records going back as early as 2006. We will continue to collect future data for up to 1 year from the beginning of data collection.
Secondary Outcome Measures :
Validated Questionnaires [ Time Frame: 2 hours ]
Validated questionnaires (where available) will be administered prospectively to grade current feeding competence for age, assess developmental status, assess food preferences and score parental stress
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Ages Eligible for Study:
3 Months to 6 Years (Child)
Sexes Eligible for Study:
Accepts Healthy Volunteers:
Patients seen in home-TPN clinic and subjects who meet the inclusion criteria will be invited to participate.
Patients seen in home-TPN clinic since July of 2008 with:
Onset < 3 months of age
Received home parenteral nutrition following initial hospital discharge
Less than 7 years of age at time of study
Must have at least 1 parent/legal guradian willing to participate in the study
Not seen in home TPN clinic
Short gut with onset >3 months
No parents/legal guradians willing to participate in the study