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First Episode Psychosis and Pathway to Care in Nordland

The recruitment status of this study is unknown. The completion date has passed and the status has not been verified in more than two years.
Verified April 2015 by Nordlandssykehuset HF.
Recruitment status was:  Active, not recruiting
Information provided by (Responsible Party):
Nordlandssykehuset HF Identifier:
First received: December 17, 2012
Last updated: April 1, 2015
Last verified: April 2015
First episode psychosis patients often experiences treatment delay. This reduces their prospects for recovery and makes unnecessary burdens for them and their carers. A better understanding of help seeking intentions is required, and has not been explored in a county like Nordland, Norway, with long distances and challenging access to health services. The purpose of this study is to explore the process of help seeking, including how patients and their careers discover and understand the psychotic symptoms. Research exploring the impact on families mainly focuses on parents` experiences, and there are less studies focusing on experiences and needs of siblings. This study will therefore explore siblings` experiences separate from their parents. Methods will be qualitative interviews with patients, their carers and siblings. Analysis will be influenced by Grounded theory.

First Episode Psychosis

Study Type: Observational
Study Design: Observational Model: Case-Only
Time Perspective: Retrospective
Official Title: Patients and Carers Experiences With First Episode Psychosis and Pathway to Care in Nordland: A Qualitative Study

Resource links provided by NLM:

Further study details as provided by Nordlandssykehuset HF:

Primary Outcome Measures:
  • Patient experience [ Time Frame: up to 100 weeks ]
  • Carers experiences [ Time Frame: up to 100 weeks ]
  • Siblings experiences [ Time Frame: up to 100 weeks ]
  • Pathway to care [ Time Frame: up to 100 weeks ]

Estimated Enrollment: 40
Study Start Date: January 2013
Estimated Study Completion Date: December 2015
Estimated Primary Completion Date: December 2015 (Final data collection date for primary outcome measure)

Ages Eligible for Study:   16 Years to 35 Years   (Child, Adult)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Probability Sample
Study Population
Patients experiencing first and multiple episode psychosis carers siblings

Inclusion Criteria:

  • age 16-35,
  • understand and speak Norwegian
  • able to give consent
  • no learning disabilities

Exclusion Criteria:

  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

No Contacts or Locations Provided
  More Information

Responsible Party: Nordlandssykehuset HF Identifier: NCT01753284     History of Changes
Other Study ID Numbers: 2012/1650(REK)
Study First Received: December 17, 2012
Last Updated: April 1, 2015

Additional relevant MeSH terms:
Psychotic Disorders
Mental Disorders
Schizophrenia Spectrum and Other Psychotic Disorders processed this record on August 21, 2017