Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria
This study has been completed.
First Posted: August 8, 2012
Last Update Posted: December 11, 2015
Information provided by (Responsible Party):
Rani Singh, Emory University
The purpose of this project is to study the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attended Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.
|Study Design:||Intervention Model: Single Group Assignment
Masking: None (Open Label)
Primary Purpose: Prevention
|Official Title:||Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD).|
Resource links provided by NLM:
Genetics Home Reference related topics: maple syrup urine disease phenylketonuria tetrahydrobiopterin deficiency
Genetic and Rare Diseases Information Center resources: Phenylketonuria Maple Syrup Urine Disease Inborn Amino Acid Metabolism DisorderU.S. FDA Resources
Further study details as provided by Rani Singh, Emory University:
|Study Start Date:||June 1995|
|Study Completion Date:||June 2000|
|Primary Completion Date:||June 2000 (Final data collection date for primary outcome measure)|
Behavioral: Metabolic camp
To use an recreational camp setting to instruct PKU females of reproductive age how to make responsible dietary and reproductive decisions.
Contacts and Locations
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