Long Term Effects On Recipients of Hematopoietic Stem Cell Transplantation
The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government.
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This project allows for the systematic collection and analysis of long-term follow-up clinical parameters in children who have received a stem cell transplant. The data collected will assist in determining appropriate intervention and treatment plans for patients enrolled on this study. In addition, future patients may benefit by having the ability to anticipate problems and develop methods of prevention or early intervention.
Collection of data and tissue samples with the goal of establishing a systematic follow-up care for HSCT recipients and a comprehensive database which can capture the particularities of survivors' clinical status through their life span. [ Time Frame: This research study is expected to continue as long as we continue to perform clinical trials for children with diseases that involve the bone marrow or are affected by bone marrow production. ]
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Ages Eligible for Study:
up to 18 Years (Child, Adult)
Sexes Eligible for Study:
Accepts Healthy Volunteers:
Stanford Blood and Marrow Transplant clinic.
Children up to 18 years old at the time of enrollment.
Status post stem cell transplantation after hospital discharge from transplant.
Confirmation for participation through check marks on the written informed consent from the subject (as applicable) AND/OR participant's parent/legally authorized representative prior using data for research purposes
Patient height is < 132 cm.
Patient is currently using oxygen therapy or has resting oxygen saturation (SaO2) < 90%.
Patient is unable to walk without the aid of devices or support.