How Neurofibromatosis Type 1 (NF1) Affects Schoolwork and Self-Esteem

The recruitment status of this study is unknown because the information has not been verified recently.
Verified June 2012 by John Jay High School.
Recruitment status was  Recruiting
Information provided by (Responsible Party):
John Jay High School Identifier:
First received: June 21, 2012
Last updated: June 22, 2012
Last verified: June 2012
The study will seek to determine whether there is a corresponding deficit in school performance for teenagers with NF1. Secondly, the study seeks to explore the issue of self-esteem in teenagers with NF1.

Neurofibromatosis Type 1

Study Type: Observational
Study Design: Observational Model: Cohort
Time Perspective: Cross-Sectional
Official Title: Cognitive Impairments, Self-Esteem & Academic Performance in Teenagers With Neurofibromatosis Type 1

Resource links provided by NLM:

Further study details as provided by John Jay High School:

Primary Outcome Measures:
  • Evidence of effect on self-esteem evidenced by self-esteem scores [ Time Frame: 4 months ] [ Designated as safety issue: No ]

Estimated Enrollment: 50
Study Start Date: June 2012
Estimated Study Completion Date: September 2012
NF1 teenagers


Ages Eligible for Study:   14 Years to 17 Years
Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   Yes
Sampling Method:   Non-Probability Sample
Study Population
Teenagers aged 14-17 years with NF1

Inclusion Criteria:

  • Clinical diagnosis of Neurofibromatosis Type 1

Exclusion Criteria:

  • Neurofibromatosis Type 2
  • Schwannomatosis
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its identifier: NCT01626846

Contact: Chris Ramsay 914-355-8010

United States, New York
John Jay High School Recruiting
Cross River, New York, United States, 10518
Contact: Chris Ramsay   
Sponsors and Collaborators
John Jay High School
Study Director: Eileen Karlik, PhD Westchester Community College
  More Information

Responsible Party: John Jay High School Identifier: NCT01626846     History of Changes
Other Study ID Numbers: NF Survey 2012 
Study First Received: June 21, 2012
Last Updated: June 22, 2012
Health Authority: United States: Institutional Review Board

Keywords provided by John Jay High School:

Additional relevant MeSH terms:
Neurofibromatosis 1
Genetic Diseases, Inborn
Heredodegenerative Disorders, Nervous System
Neoplasms by Histologic Type
Neoplasms, Nerve Tissue
Neoplastic Syndromes, Hereditary
Nerve Sheath Neoplasms
Nervous System Diseases
Nervous System Neoplasms
Neurocutaneous Syndromes
Neurodegenerative Diseases
Neuromuscular Diseases
Peripheral Nervous System Diseases
Peripheral Nervous System Neoplasms processed this record on May 26, 2016