How Neurofibromatosis Type 1 (NF1) Affects Schoolwork and Self-Esteem
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| ClinicalTrials.gov Identifier: NCT01626846 |
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Recruitment Status
: Unknown
Verified June 2012 by John Jay High School.
Recruitment status was: Recruiting
First Posted
: June 25, 2012
Last Update Posted
: June 25, 2012
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Sponsor:
John Jay High School
Information provided by (Responsible Party):
John Jay High School
- Study Details
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Brief Summary:
The study will seek to determine whether there is a corresponding deficit in school performance for teenagers with NF1. Secondly, the study seeks to explore the issue of self-esteem in teenagers with NF1.
| Condition or disease |
|---|
| Neurofibromatosis Type 1 |
| Study Type : | Observational |
| Estimated Enrollment : | 50 participants |
| Observational Model: | Cohort |
| Time Perspective: | Cross-Sectional |
| Official Title: | Cognitive Impairments, Self-Esteem & Academic Performance in Teenagers With Neurofibromatosis Type 1 |
| Study Start Date : | June 2012 |
| Estimated Study Completion Date : | September 2012 |
Resource links provided by the National Library of Medicine
MedlinePlus related topics:
Neurofibromatosis
Genetic and Rare Diseases Information Center resources:
Neurofibromatosis
Neurofibromatosis Type 1
Neurofibroma
U.S. FDA Resources
| Group/Cohort |
|---|
| NF1 teenagers |
Primary Outcome Measures
:
- Evidence of effect on self-esteem evidenced by self-esteem scores [ Time Frame: 4 months ]
Information from the National Library of Medicine
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| Ages Eligible for Study: | 14 Years to 17 Years (Child) |
| Sexes Eligible for Study: | All |
| Accepts Healthy Volunteers: | Yes |
| Sampling Method: | Non-Probability Sample |
Study Population
Teenagers aged 14-17 years with NF1
Criteria
Inclusion Criteria:
- Clinical diagnosis of Neurofibromatosis Type 1
Exclusion Criteria:
- Neurofibromatosis Type 2
- Schwannomatosis
Information from the National Library of Medicine
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT01626846
Contacts
| Contact: Chris Ramsay | 914-355-8010 | christopher.ramsay@klschools.org |
Locations
| United States, New York | |
| John Jay High School | Recruiting |
| Cross River, New York, United States, 10518 | |
| Contact: Chris Ramsay christopher.ramsay@klschools.org | |
Sponsors and Collaborators
John Jay High School
Investigators
| Study Director: | Eileen Karlik, PhD | Westchester Community College |
| Responsible Party: | John Jay High School |
| ClinicalTrials.gov Identifier: | NCT01626846 History of Changes |
| Other Study ID Numbers: |
NF Survey 2012 |
| First Posted: | June 25, 2012 Key Record Dates |
| Last Update Posted: | June 25, 2012 |
| Last Verified: | June 2012 |
Keywords provided by John Jay High School:
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Neurofibromatosis |
Additional relevant MeSH terms:
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Neurofibromatoses Neurofibromatosis 1 Neurofibroma Nerve Sheath Neoplasms Neoplasms, Nerve Tissue Neoplasms by Histologic Type Neoplasms Neoplastic Syndromes, Hereditary Neurocutaneous Syndromes |
Nervous System Diseases Heredodegenerative Disorders, Nervous System Neurodegenerative Diseases Genetic Diseases, Inborn Peripheral Nervous System Diseases Neuromuscular Diseases Peripheral Nervous System Neoplasms Nervous System Neoplasms |