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How Neurofibromatosis Type 1 (NF1) Affects Schoolwork and Self-Esteem
The recruitment status of this study is unknown. The completion date has passed and the status has not been verified in more than two years.
Verified June 2012 by John Jay High School.
Recruitment status was: Recruiting
Recruitment status was: Recruiting
Sponsor:
John Jay High School
Information provided by (Responsible Party):
John Jay High School
ClinicalTrials.gov Identifier:
NCT01626846
First received: June 21, 2012
Last updated: June 22, 2012
Last verified: June 2012
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Purpose
The study will seek to determine whether there is a corresponding deficit in school performance for teenagers with NF1. Secondly, the study seeks to explore the issue of self-esteem in teenagers with NF1.
| Condition |
|---|
| Neurofibromatosis Type 1 |
| Study Type: | Observational |
| Study Design: | Observational Model: Cohort Time Perspective: Cross-Sectional |
| Official Title: | Cognitive Impairments, Self-Esteem & Academic Performance in Teenagers With Neurofibromatosis Type 1 |
Resource links provided by NLM:
MedlinePlus related topics:
Neurofibromatosis
Genetic and Rare Diseases Information Center resources:
Neurofibromatosis Type 1
Neurofibromatosis
Neurofibroma
U.S. FDA Resources
Further study details as provided by John Jay High School:
Primary Outcome Measures:
- Evidence of effect on self-esteem evidenced by self-esteem scores [ Time Frame: 4 months ]
| Estimated Enrollment: | 50 |
| Study Start Date: | June 2012 |
| Estimated Study Completion Date: | September 2012 |
| Groups/Cohorts |
|---|
| NF1 teenagers |
Eligibility| Ages Eligible for Study: | 14 Years to 17 Years (Child) |
| Sexes Eligible for Study: | All |
| Accepts Healthy Volunteers: | Yes |
| Sampling Method: | Non-Probability Sample |
Study Population
Teenagers aged 14-17 years with NF1
Criteria
Inclusion Criteria:
- Clinical diagnosis of Neurofibromatosis Type 1
Exclusion Criteria:
- Neurofibromatosis Type 2
- Schwannomatosis
Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study.
To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below.
For general information, see Learn About Clinical Studies.
Please refer to this study by its ClinicalTrials.gov identifier: NCT01626846
Please refer to this study by its ClinicalTrials.gov identifier: NCT01626846
Contacts
| Contact: Chris Ramsay | 914-355-8010 | christopher.ramsay@klschools.org |
Locations
| United States, New York | |
| John Jay High School | Recruiting |
| Cross River, New York, United States, 10518 | |
| Contact: Chris Ramsay christopher.ramsay@klschools.org | |
Sponsors and Collaborators
John Jay High School
Investigators
| Study Director: | Eileen Karlik, PhD | Westchester Community College |
More Information
| Responsible Party: | John Jay High School |
| ClinicalTrials.gov Identifier: | NCT01626846 History of Changes |
| Other Study ID Numbers: |
NF Survey 2012 |
| Study First Received: | June 21, 2012 |
| Last Updated: | June 22, 2012 |
Keywords provided by John Jay High School:
|
Neurofibromatosis |
Additional relevant MeSH terms:
|
Neurofibromatosis 1 Neurofibromatoses Neurofibroma Nerve Sheath Neoplasms Neoplasms, Nerve Tissue Neoplasms by Histologic Type Neoplasms Neoplastic Syndromes, Hereditary Neurocutaneous Syndromes |
Nervous System Diseases Heredodegenerative Disorders, Nervous System Neurodegenerative Diseases Genetic Diseases, Inborn Peripheral Nervous System Neoplasms Nervous System Neoplasms Peripheral Nervous System Diseases Neuromuscular Diseases |
ClinicalTrials.gov processed this record on August 23, 2017