How Neurofibromatosis Type 1 (NF1) Affects Schoolwork and Self-Esteem

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details. Identifier: NCT01626846
Recruitment Status : Unknown
Verified June 2012 by John Jay High School.
Recruitment status was:  Recruiting
First Posted : June 25, 2012
Last Update Posted : June 25, 2012
Information provided by (Responsible Party):
John Jay High School

Brief Summary:
The study will seek to determine whether there is a corresponding deficit in school performance for teenagers with NF1. Secondly, the study seeks to explore the issue of self-esteem in teenagers with NF1.

Condition or disease
Neurofibromatosis Type 1

Study Type : Observational
Estimated Enrollment : 50 participants
Observational Model: Cohort
Time Perspective: Cross-Sectional
Official Title: Cognitive Impairments, Self-Esteem & Academic Performance in Teenagers With Neurofibromatosis Type 1
Study Start Date : June 2012
Estimated Study Completion Date : September 2012

NF1 teenagers

Primary Outcome Measures :
  1. Evidence of effect on self-esteem evidenced by self-esteem scores [ Time Frame: 4 months ]

Information from the National Library of Medicine

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Ages Eligible for Study:   14 Years to 17 Years   (Child)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   Yes
Sampling Method:   Non-Probability Sample
Study Population
Teenagers aged 14-17 years with NF1

Inclusion Criteria:

  • Clinical diagnosis of Neurofibromatosis Type 1

Exclusion Criteria:

  • Neurofibromatosis Type 2
  • Schwannomatosis

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its identifier (NCT number): NCT01626846

Contact: Chris Ramsay 914-355-8010

United States, New York
John Jay High School Recruiting
Cross River, New York, United States, 10518
Contact: Chris Ramsay   
Sponsors and Collaborators
John Jay High School
Study Director: Eileen Karlik, PhD Westchester Community College

Responsible Party: John Jay High School Identifier: NCT01626846     History of Changes
Other Study ID Numbers: NF Survey 2012
First Posted: June 25, 2012    Key Record Dates
Last Update Posted: June 25, 2012
Last Verified: June 2012

Keywords provided by John Jay High School:

Additional relevant MeSH terms:
Neurofibromatosis 1
Nerve Sheath Neoplasms
Neoplasms, Nerve Tissue
Neoplasms by Histologic Type
Neoplastic Syndromes, Hereditary
Neurocutaneous Syndromes
Nervous System Diseases
Heredodegenerative Disorders, Nervous System
Neurodegenerative Diseases
Genetic Diseases, Inborn
Peripheral Nervous System Diseases
Neuromuscular Diseases
Peripheral Nervous System Neoplasms
Nervous System Neoplasms