Worldwide Sarcoidosis Research Study (WISE)
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|ClinicalTrials.gov Identifier: NCT01610843|
Recruitment Status : Unknown
Verified May 2018 by Alicia Gerke, University of Iowa.
Recruitment status was: Recruiting
First Posted : June 4, 2012
Last Update Posted : May 24, 2018
The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.
The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.
|Condition or disease||Intervention/treatment|
|Study Type :||Observational|
|Estimated Enrollment :||10000 participants|
|Official Title:||Worldwide Sarcoidosis Research Study|
|Study Start Date :||December 2011|
|Estimated Primary Completion Date :||December 2020|
|Estimated Study Completion Date :||December 2020|
- Other: Survey
- Define and characterize sarcoidosis phenotypes and methods of care [ Time Frame: Anticipated by 2017 ]To give a broader and less biased view of sarcoidosis
Biospecimen Retention: Samples With DNA
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT01610843
|Contact: Alicia K Gerke, MDfirstname.lastname@example.org|
|Contact: Emily K Phillips, BSNemail@example.com|
|United States, Iowa|
|University of Iowa||Recruiting|
|Iowa City, Iowa, United States, 52242|
|Contact: Alicia K Gerke, MD 319-356-1869 firstname.lastname@example.org|
|Sub-Investigator: Alicia K Gerke, MD|
|Principal Investigator:||Alicia K Gerke, MD||University of Iowa|