Worldwide Sarcoidosis Research Study (WISE)
The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.
The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.
|Study Design:||Observational Model: Cohort
Time Perspective: Prospective
|Official Title:||Worldwide Sarcoidosis Research Study|
- Define and characterize sarcoidosis phenotypes and methods of care [ Time Frame: Anticipated by 2017 ] [ Designated as safety issue: No ]To give a broader and less biased view of sarcoidosis
Biospecimen Retention: Samples With DNA
Saliva samples will be collected and processed at the University of Iowa.
|Study Start Date:||December 2011|
|Estimated Primary Completion Date:||January 2017 (Final data collection date for primary outcome measure)|
Please refer to this study by its ClinicalTrials.gov identifier: NCT01610843
|Contact: Alicia K Gerke, MDfirstname.lastname@example.org|
|Contact: Emily K Phillips, BSNemail@example.com|
|United States, Iowa|
|University of Iowa||Recruiting|
|Iowa City, Iowa, United States, 52242|
|Contact: Alicia K Gerke, MD 319-356-1869 firstname.lastname@example.org|
|Sub-Investigator: Alicia K Gerke, MD|
|Principal Investigator:||Alicia K Gerke, MD||University of Iowa|