A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis
With the rise of usage of the internet, online social networks have recently been gaining popularity. Joining these groups can be beneficial to patients with chronic medical illness, such as psoriasis.This was a cross-sectional online survey of psoriasis patients in the Philippines who are members of online support groups. The survey was conducted for a period of three months.The purpose of the research project was to describe the demographics, disease characteristics, activities and benefits of online support groups to Filipino patients with psoriasis. The extent to which members experience empowering processes and outcomes was also evaluated.
|Study Design:||Observational Model: Ecologic or Community
Time Perspective: Cross-Sectional
|Official Title:||A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis|
- Demographic profile of online support users [ Time Frame: 3 months ] [ Designated as safety issue: No ]The sociodemographic profile of the respondents such as age (mean, range), sex, civil status, level of formal education, employment status were described.
- Disease characteristics of online support users [ Time Frame: 3 months ] [ Designated as safety issue: No ]The overall health status (poor, average, good), psoriasis severity (mild, moderate, severe), duration of illness of online support groups were evaluated.
- Activities performed and extent of participation of online support users [ Time Frame: 3 months ] [ Designated as safety issue: No ]Participants were also asked regarding their attitudes and experiences with online communities, length of use, log-on frequency and nature of online activities.
- Empowering processes and outcomes experienced by online support group members [ Time Frame: 3 months ] [ Designated as safety issue: No ]The frequency with which empowering processes (exchange information, find recognition, share experiences, encounter emotional support, help others) occurred were measured on a 3-point scale (1-seldom to never, 2-sometimes, 3-often). The outcomes experienced (are better informed, feel more confident in relationship with physician, have improved acceptance, feel more confident with treatment, have enhanced social well-being, have increased optimism and control over the future, have enhanced self-esteem) were assessed on a 3-point scale (1-disagree, 2-neither agree nor disagree, 3-agree).
- Correlation of variables [ Time Frame: 3 months ] [ Designated as safety issue: No ]Intervariable correlation (overall health status/psoriasis severity with frequency/duration of usage, educational level/employment status with frequency of usage) were also be assessed for significance.
|Study Start Date:||February 2011|
|Study Completion Date:||August 2011|
|Primary Completion Date:||June 2011 (Final data collection date for primary outcome measure)|
|Online support user||
Behavioral: Online support group
Joining online support group
Other Name: Online social network, virtual online community
Please refer to this study by its ClinicalTrials.gov identifier: NCT01465061
|Principal Investigator:||Charlene U Ang-Tiu, MD||University of the Philippines-Philippine General Hospital Section of Dermatology|