Parenting a Child With Autism Spectrum Disorder and Marital Status

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details. Identifier: NCT01435733
Recruitment Status : Suspended (Recruitment Status)
First Posted : September 19, 2011
Last Update Posted : July 2, 2018
Information provided by (Responsible Party):
Sheba Medical Center

Brief Summary:
The purpose of this study is to investigate whether the presence of a child with Autism Spectrum Disorder places parents at increased risk for divorce.

Condition or disease
Autism Spectrum Disorder

Detailed Description:

Autism spectrum disorders (ASDs) are lifelong neurodevelopmental disorders involving a triad of impairments in communication and social reciprocity and increases in repetitive/restricted interests and behaviors. ASD includes: autistic disorder, Asperger's syndrome, pervasive developmental disorder not otherwise specified (PDD-NOS), Rett's syndrome, and childhood disintegrative disorder as pervasive developmental disorders (American Psychiatric Association [DSM-IV-TR], 2000).

Few disabilities appear to be more taxing on parents than ASDs.Parents of children with ASD fare worse on a variety of measures of well-being than parents of children without disabilities as well as parents of children with other types of disabilities.

Studies investigating the impact of a child with disabilities, specifically ASD, are inconclusive. However, parents of children with ASD may be at increased risk for divorce due to a variety of personal and disability related factors. In Israel the relationship of having a child with autism on the probability of divorce has not been tested yet. The aim of this study is to profile this relationship and determine the magnitude and directionality of the effect raising ASD children has on the resilience of the institution of marriage and the satisfaction both partners derive. This will be tested using a short telephone survey.

Study Type : Observational
Estimated Enrollment : 200 participants
Observational Model: Case-Only
Time Perspective: Retrospective
Official Title: Parenting a Child With Autism Spectrum Disorder and Marital Status
Study Start Date : September 1, 2011
Estimated Primary Completion Date : January 1, 2020
Estimated Study Completion Date : January 1, 2020

Resource links provided by the National Library of Medicine

Parents of children with ASD
Parents with one or more children diagnosed with Autism Spectrum Disorder

Primary Outcome Measures :
  1. lower or higher levels of divorce [ Time Frame: not relevant (phone survey) ]
    lower or higher levels of divorce

Information from the National Library of Medicine

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Ages Eligible for Study:   Child, Adult, Older Adult
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Couples who have children with ASD will be recruited to participate in this study from the Weinberg Child Development Center in the Edmond and LilySafra Children'shospital, ShebaMedical Center, Ramat-Gan, Israel. Parents will be contacted through the telephone and provided with a brief explanation about the study. Participation will be voluntary with no monetary compensation. Parents who volunteer to participate will then be presented with a short telephone survey, asking them about their marital status and other variables related to the link between parenting an ASD child and their marital status.

Inclusion Criteria:

  • parents to a child with ASD

Exclusion Criteria:

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its identifier (NCT number): NCT01435733

Weinberg Child Development Center, Sheba Medical Center, Tel-Hashomer
Ramat Gan, Israel
Sponsors and Collaborators
Sheba Medical Center
Principal Investigator: Lidia Gabis, MD Sheba Medical Center
Principal Investigator: Gilad Gal, Ph.D Tel Aviv-Yafo Academic College
Study Director: Klara Zislin, BA Sheba Medical Center

Responsible Party: Sheba Medical Center Identifier: NCT01435733     History of Changes
Other Study ID Numbers: SHEBA-11-8552-LG-CTIL
First Posted: September 19, 2011    Key Record Dates
Last Update Posted: July 2, 2018
Last Verified: June 2018
Individual Participant Data (IPD) Sharing Statement:
Plan to Share IPD: No

Keywords provided by Sheba Medical Center:

Additional relevant MeSH terms:
Autistic Disorder
Autism Spectrum Disorder
Child Development Disorders, Pervasive
Pathologic Processes
Neurodevelopmental Disorders
Mental Disorders