International Lymphatic Disease and Lymphedema Registry
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The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details. |
ClinicalTrials.gov Identifier: NCT01336790 |
Recruitment Status
:
Recruiting
First Posted
: April 18, 2011
Last Update Posted
: March 2, 2018
|
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Condition or disease |
---|
Lymphedema |
Study Type : | Observational |
Estimated Enrollment : | 5000 participants |
Observational Model: | Case-Only |
Time Perspective: | Other |
Official Title: | The International Lymphatic Disease and Lymphedema Patient Registry and Tissue Bank |
Study Start Date : | March 2009 |
Estimated Primary Completion Date : | December 2024 |
Estimated Study Completion Date : | December 2025 |

- prevalence of lymphatic disease [ Time Frame: 15 years ]
- socioeconomic impact of lymphatic disease [ Time Frame: 15 years ]The data in the registry will be utilized to determine the financial impact of requisite diagnostic and treatment interventions and will be analyzed to consider the relative contribution of third-party payer participation in the cost of care. The financial impact of disease and treatment will be addressed through the financial data entered by registry participants.

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Ages Eligible for Study: | Child, Adult, Senior |
Sexes Eligible for Study: | All |
Accepts Healthy Volunteers: | No |
Sampling Method: | Non-Probability Sample |
Inclusion Criteria:
- Presence of lymphatic disease
Exclusion Criteria:

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT01336790
Contact: Leslie Roche, RN/BSN | (650) 7231396 | lesroche@stanford.edu |
United States, California | |
Stanford University School of Medicine | Recruiting |
Stanford, California, United States, 94305 | |
Contact: Leslie Roche, RN/BSN 650-723-1396 lesroche@stanford.edu | |
Principal Investigator: Stanley G Rockson |
Principal Investigator: | Stanley G Rockson | Stanford University |
Additional Information:
Responsible Party: | Stanley Rockson, Allan and Tina Neill Professor of Lymphatic Research and Medicine, Stanford University |
ClinicalTrials.gov Identifier: | NCT01336790 History of Changes |
Other Study ID Numbers: |
SU-04052011-7662 16384 ( Other Identifier: Stanford IRB ) |
First Posted: | April 18, 2011 Key Record Dates |
Last Update Posted: | March 2, 2018 |
Last Verified: | February 2018 |
Individual Participant Data (IPD) Sharing Statement: | |
Plan to Share IPD: | Undecided |
Plan Description: | grouped data may be shared |
Keywords provided by Stanley Rockson, Stanford University:
Lymphatic disease Lymphedema Lymphangiomatosis |
Lymphangiectasia Protein-losing enteropathy Vascular Anomalies |
Additional relevant MeSH terms:
Lymphedema Lymphatic Diseases |