Cancer Experience Registry: An Online Initiative to Change the Future of Cancer Care
|Study Design:||Observational Model: Case-Only
Time Perspective: Cross-Sectional
|Official Title:||Cancer Experience Registry: An Online Initiative to Change the Future of Cancer Care|
- Self-reported quality of life measures [ Time Frame: 4 weeks ]
|Study Start Date:||March 2013|
|Estimated Study Completion Date:||February 2020|
|Estimated Primary Completion Date:||February 2020 (Final data collection date for primary outcome measure)|
This is a broad observational study conducted online at www.cancerexperienceregistry.org, or via pen and paper survey obtained by calling the cancer support helpline at 888-793-9355
Any individual who has ever received a cancer diagnosis, regardless of disease type, stage, treatment, and time since diagnosis, can take part in this study.
The online registry will allow CSC's Research and Training Institute to report annually on trends and changes in the emotional health status of cancer survivors. Such data collection and tracking will serve as the basis for increasing public awareness and in developing effective programs to address the often misunderstood and under served needs of cancer survivors. The registry will fill a critical gap by providing a mechanism to learn directly from cancer survivors what issues they face.
The Cancer Support Community's Research and Training Institute will disseminate an annual report to highlight the findings of the registry. The report will be available to the cancer community at large.
Please refer to this study by its ClinicalTrials.gov identifier: NCT01295658
|Contact: Amna Baig, MPHfirstname.lastname@example.org|
|Contact: Joanne S Buzaglo, PhDemail@example.com|
|United States, Pennsylvania|
|Cancer Support Community Research & Training Institute||Recruiting|
|Philadelphia, Pennsylvania, United States, 19131|
|Contact: Joanne S Buzaglo, PhD 267-295-3001 firstname.lastname@example.org|
|Contact: Amna Baig, MPH 267-295-3002 email@example.com|
|Principal Investigator: Joanne S Buzaglo, PhD|
|Sub-Investigator: Mitch Golant, PhD|
|Principal Investigator:||Joanne S Buzaglo, PhD||Cancer Support Community|