Characteristics of Adult Patients With Recessive Dystrophic Epidermolysis Bullosa
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ClinicalTrials.gov Identifier: NCT00904163 |
Recruitment Status
:
Completed
First Posted
: May 19, 2009
Last Update Posted
: May 16, 2014
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Condition or disease |
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Epidermolysis Bullosa Dystrophica |
Study Type : | Observational |
Actual Enrollment : | 13 participants |
Observational Model: | Case-Only |
Time Perspective: | Prospective |
Official Title: | Characteristics of Adult Patients With Recessive Dystrophic Epidermolysis Bullosa |
Study Start Date : | April 2009 |
Actual Primary Completion Date : | May 2014 |
Actual Study Completion Date : | May 2014 |


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Ages Eligible for Study: | 18 Years and older (Adult, Senior) |
Sexes Eligible for Study: | All |
Accepts Healthy Volunteers: | No |
Sampling Method: | Non-Probability Sample |
Inclusion Criteria:1. Clinical diagnosis of RDEB by local dermatologist. 2. 18 years of age or more and willing to give consent.
Exclusion Criteria:1. Medical instability limiting ability to travel to Stanford University Medical Center.

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00904163
United States, California | |
Stanford University School of Medicine | |
Stanford, California, United States, 94305 |
Principal Investigator: | Alfred T Lane | Stanford University |
Responsible Party: | Alfred Lane, Professor of Dermatology and Pediatrics, Stanford University |
ClinicalTrials.gov Identifier: | NCT00904163 History of Changes |
Other Study ID Numbers: |
SU-04232009-2383 |
First Posted: | May 19, 2009 Key Record Dates |
Last Update Posted: | May 16, 2014 |
Last Verified: | May 2014 |
Additional relevant MeSH terms:
Epidermolysis Bullosa Epidermolysis Bullosa Dystrophica Skin Abnormalities Congenital Abnormalities Skin Diseases, Genetic |
Genetic Diseases, Inborn Skin Diseases Skin Diseases, Vesiculobullous Collagen Diseases Connective Tissue Diseases |