Adaptation Among Adolescents and Adults With Klinefelter Syndrome
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|ClinicalTrials.gov Identifier: NCT00896272|
Recruitment Status : Completed
First Posted : May 11, 2009
Last Update Posted : May 16, 2018
|Condition or disease|
|Study Type :||Observational|
|Actual Enrollment :||302 participants|
|Official Title:||Adaptation Among Adolescents and Adults With Klinefelter Syndrome|
|Study Start Date :||May 5, 2009|
|Study Completion Date :||January 13, 2015|
- Adaptation to Klinefelter. The primary research question is to answer how adolescents and adults adapt to Klinefelter syndrome.
- Open ended questions will also assess most difficult and best aspects of living with the condition. Follow-up research will be aimed at opportunities for enhancing adaptation.
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00896272
|United States, Maryland|
|National Human Genome Research Institute (NHGRI), 9000 Rockville Pike|
|Bethesda, Maryland, United States, 20892|
|Principal Investigator:||Barbara B Biesecker||National Human Genome Research Institute (NHGRI)|