Patient-Reported Outcomes (PRO)-Based Palliative and Hospice Care Practice: A Qualitative Study
The goal of this research study is to collect information to plan how to design a computer program for cancer patients receiving palliative care, their caregivers, and doctors and nurses who work in palliative care. Researchers want to learn how to make this program practical for use by future patients, caregivers, doctors, and nurses.
|Study Design:||Observational Model: Case-Only
Time Perspective: Prospective
|Official Title:||A Qualitative Study of Patient-Reported Outcomes (PRO)-Based Palliative and Hospice Care Practice: Integrating PROs and Decision Support Into an Electronic Record|
- Define Patient-Reported Outcomes (PRO)-based Palliative/Hospice Care Model Integrating PRO Results with Evidence-based Treatment Guidelines and Pathways to Care [ Time Frame: 2 Years ] [ Designated as safety issue: No ]Through focused interviews with specific tasks: review PRO domains and questionnaires for the care mode; review user interface design and work flow; discuss user expectations of the system to assess the usability of a system's user interface design.
|Study Start Date:||March 2009|
|Study Completion Date:||September 2011|
|Primary Completion Date:||September 2011 (Final data collection date for primary outcome measure)|
3 step process including person to person meeting and questionnaires taking about 30 minutes.
Other Name: Survey
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Please refer to this study by its ClinicalTrials.gov identifier: NCT00878267
|United States, Texas|
|UT MD Anderson Cancer Center|
|Houston, Texas, United States, 77030|
|Principal Investigator:||Michael A. Kallen, PhD||UT MD Anderson Cancer Center|