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Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers Patient Perspectives: Perspectives of Health Care Providers

This study has been completed.
Canadian Arthritis Network
Information provided by:
Sunnybrook Health Sciences Centre Identifier:
First received: January 26, 2009
Last updated: January 6, 2011
Last verified: January 2011
Inflammatory arthritis (IA) is a major cause of long-term disability. Due to specialist shortages, failure of primary care providers and individuals to recognize the disease, and lack of awareness of the importance of early intervention, delays to rheumatologic care are common. Peer support models have been used for various health issues and may be one method to assist individuals with early IA to manage their disease and cope with stress. Qualitative research methods (one-on-one interviews) will seek out feedback on a peer support approach and explore the learning needs (informational needs, educational preferences) and opinions about emotional and appraisal support of individuals living with IA, from the perspectives of health care providers. The data will be analyzed and expressed themes (articulated needs and understandings of interviewee context) will guide the future development of a peer support intervention


Study Type: Observational
Official Title: Exploring the Learning Needs of Individuals With Inflammatory Arthritis From the Perspectives of Patients, Family Members and Friends, and Health Care Providers Patient Perspectives: Perspectives of Health Care Providers

Resource links provided by NLM:

Further study details as provided by Sunnybrook Health Sciences Centre:

Primary Outcome Measures:
  • learning needs (informational needs and educational preferences) [ Time Frame: 0 months ] [ Designated as safety issue: No ]

Estimated Enrollment: 10
Study Start Date: January 2009
Study Completion Date: December 2009
Primary Completion Date: December 2009 (Final data collection date for primary outcome measure)
  Show Detailed Description


Ages Eligible for Study:   18 Years and older   (Adult, Senior)
Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Health care providers of patients with inflammatory arthritis

Inclusion Criteria:

  1. Healthcare providers for patients diagnosed with inflammatory arthritis.
  2. Physicians, nurses, occupational therapist, physiotherapists, social workers and other healthcare providers.
  3. 18 years of age or older.
  4. Able to participate in a 1 hour interview.
  5. Ontario residents
  6. Fluent in English
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its identifier: NCT00832793

Canada, Ontario
Sunnybrook Health Sciences Centre
Toronto, Ontario, Canada
Sponsors and Collaborators
Sunnybrook Health Sciences Centre
Canadian Arthritis Network
Principal Investigator: Mary J Bell, MD, FRCPC Sunnybrook Health Sciences Centre
  More Information

1. Badley,E.M. J. Rheumatol. Suppl 43, 19-22 (1995). 2. Badley,E.M. & Wang,P.P. J. Rheumatol. 25, 138-144 (1998). 3. Badley,E.M., Rothman,L.M. & Wang,P.P. Arthritis Care Res. 11, 335-345 (1998). 4. Badley,E.M. & Wang,P.P. J. Rheumatol. 28, 1077-1082 (2001). 5. Perruccio,A.V., Power,J.D. & Badley,E.M. J. Rheumatol. 33, 1856-1862 (2006). 6. Schiff,M. Am. J. Med. 102, 11S-15S (1997). 7. Beaulieu,M., Choquette,D., Rahme,E., Bessette,L. & Carrier,R. Am. J. Manag. Care 10, 569-575 (2004). 8. Glazier,R.H. et al. J. Rheumatol. 30, 1846-1850 (2003). 9. Irvine,S., Munro,R. & Porter,D. Ann. Rheum. Dis. 58, 510-513 (1999). 10. Hernandez-Garcia,C. et al. J. Rheumatol. 27, 2323-2328 (2000). 11. Suter,L.G., Fraenkel,L. & Holmboe,E.S. Arthritis Rheum. 55, 300-305 (2006). 12. Anderson,J.J., Wells,G., Verhoeven,A.C. & Felson,D.T. Arthritis Rheum. 43, 22-29 (2000). 13. Wiles,N.J. et al. Arthritis Rheum. 44, 1033-1042 (2001). 14. Mottonen,T. et al. Arthritis Rheum. 46, 894-898 (2002). 15. Jordan,K.M. et al. Ann. Rheum. Dis. 62, 1145-1155 (2003). 16. Combe,B. et al. Ann. Rheum. Dis. 66, 34-45 (2007). 17. Keysor,J.J. et al. Critical review of arthritis self-management strategy use. Arthritis Rheum. 49, 724-731 (2003). 18. Kerns,R.D. & Habib,S. J. Pain 5, 357-367 (2004). 19. Keefe,F.J. et al. Pain 87, 303-313 (2000). 20. Dennis,C.L. Int. J. Nurs. Stud. 40, 321-332 (2003). 21. Cox,A.D. Br. J. Psychiatry 163, 6-18 (1993).

Responsible Party: Mary J Bell, Sunnybrook Health Sciences Centre Identifier: NCT00832793     History of Changes
Other Study ID Numbers: DOCH2 449-2008 
Study First Received: January 26, 2009
Last Updated: January 6, 2011
Health Authority: Canada: Ethics Review Committee

Keywords provided by Sunnybrook Health Sciences Centre:
Mixed methods research (qualitative and quantitative)
Peer support
Early inflammatory arthritis
Patient education

Additional relevant MeSH terms:
Joint Diseases
Musculoskeletal Diseases processed this record on October 21, 2016