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Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome

The recruitment status of this study is unknown. The completion date has passed and the status has not been verified in more than two years.
Verified December 2008 by Taichung Veterans General Hospital.
Recruitment status was:  Not yet recruiting
Information provided by:
Taichung Veterans General Hospital Identifier:
First received: December 15, 2008
Last updated: NA
Last verified: December 2008
History: No changes posted
Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention

Condition Intervention
Prader-Willi Syndrome
Other: counseling, emotional support
Other: emotional support

Study Type: Observational
Study Design: Observational Model: Case-Only
Time Perspective: Retrospective

Resource links provided by NLM:

Further study details as provided by Taichung Veterans General Hospital:

Primary Outcome Measures:
  • experience [ Time Frame: one year ]

Estimated Enrollment: 8
Study Start Date: December 2008
Estimated Study Completion Date: December 2009
Estimated Primary Completion Date: February 2009 (Final data collection date for primary outcome measure)
Groups/Cohorts Assigned Interventions
Lifestyle counseling Other: counseling, emotional support Other: emotional support
emotional support during the interview
Other: emotional support
emotional supporting during the interview


Ages Eligible for Study:   6 Years to 12 Years   (Child)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
a person who care and live with childre with Prader-Willi syndrome

Inclusion Criteria:

  • a person who care and live with children with Prader-Willi syndrome

Exclusion Criteria:

  • siblings or less-contact family
  • teachers
  Contacts and Locations
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Please refer to this study by its identifier: NCT00808548

Taichung Veterans General Hospital Not yet recruiting
Taichung, Taiwan, 40707
Contact: shu chien    04-25392525 ext 5938   
Sponsors and Collaborators
Taichung Veterans General Hospital
  More Information

Responsible Party: shu chien, Taichung Veterans General Hospital Identifier: NCT00808548     History of Changes
Other Study ID Numbers: C08169
Study First Received: December 15, 2008
Last Updated: December 15, 2008

Keywords provided by Taichung Veterans General Hospital:
carer's experiences
Prader-willi syndrome
personal experiences

Additional relevant MeSH terms:
Prader-Willi Syndrome
Pathologic Processes
Intellectual Disability
Neurobehavioral Manifestations
Neurologic Manifestations
Nervous System Diseases
Abnormalities, Multiple
Congenital Abnormalities
Chromosome Disorders
Genetic Diseases, Inborn
Nutrition Disorders processed this record on May 22, 2017