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Satisfaction Survey for Amyotrophic Lateral Sclerosis (ALS) Patients Comparing Rooms With and Without Assistive Technology

This study has been terminated.
(The study was discontinued due to low enrollment. A survey has been implemented in place of a formal study.)
Sponsor:
ClinicalTrials.gov Identifier:
NCT00718107
First Posted: July 18, 2008
Last Update Posted: March 5, 2013
The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details.
Collaborator:
MDA/ALS Center of Hope
Information provided by (Responsible Party):
Drexel University ( Drexel University College of Medicine )
  Purpose

The purpose of this study is :

  1. To assess the ALS patient's satisfaction related to a hospital stay on the neurology floor of Hahnemann Hospital.
  2. To compare the reported satisfaction of those individuals who stayed in a standard hospital room with those who stayed in Room 1455. Room 1455 is a room specifically set up with assistive technology related to environmental controls for individuals with disabilities.
  3. To look at frequency of use of the various pieces of adaptive equipment.

Condition
Amyotrophic Lateral Sclerosis Neurodegenerative Disease Motor Neuron Disease

Study Type: Observational
Study Design: Observational Model: Case-Only
Time Perspective: Cross-Sectional
Official Title: Satisfaction Survey for ALS Patients Comparing Rooms With and Without Assistive Technology

Resource links provided by NLM:


Further study details as provided by Drexel University ( Drexel University College of Medicine ):

Primary Outcome Measures:
  • Patient Satisfaction [ Time Frame: Period of Hospital Stay ]
    Survey administered asks patients to rate their satisfaction with their hospital stay from Very Dissatisfied to Very Satisfied. Specific questions included satisfaction with hospital staff, quality of care, and comfort and accessibility of their room.


Enrollment: 5
Study Start Date: June 2005
Study Completion Date: February 2012
Primary Completion Date: February 2012 (Final data collection date for primary outcome measure)
Groups/Cohorts
ALS
Subjects having either definite or probable ALS by El Escorial Criteria.

  Eligibility

Information from the National Library of Medicine

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.


Ages Eligible for Study:   18 Years to 90 Years   (Adult, Senior)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
In-patients from the neurology floor of Hahnemann Hospital
Criteria

Inclusion Criteria:

  • In-patients with probable or definite ALS, ages 18 - 90, staying on the neurology floor of Hahnemann Hospital

Exclusion Criteria:

  • In-patients who do not meet the criteria of the diagnosis of ALS.
  Contacts and Locations
Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00718107


Locations
United States, Pennsylvania
MDA/ALS Center of Hope
Philadelphia, Pennsylvania, United States, 19107
Sponsors and Collaborators
Drexel University College of Medicine
MDA/ALS Center of Hope
  More Information

Responsible Party: Drexel University College of Medicine
ClinicalTrials.gov Identifier: NCT00718107     History of Changes
Other Study ID Numbers: Internal-15894
First Submitted: July 14, 2008
First Posted: July 18, 2008
Last Update Posted: March 5, 2013
Last Verified: March 2013

Keywords provided by Drexel University ( Drexel University College of Medicine ):
Amyotrophic Lateral Sclerosis
Cerebrospinal Fluid
Neurodegenerative Disease
Motor Neuron Disease
Autonomic Nervous System
Neurodegenerative Diseases
Movement Disorders
Quality of Life

Additional relevant MeSH terms:
Amyotrophic Lateral Sclerosis
Sclerosis
Motor Neuron Disease
Neurodegenerative Diseases
Pathologic Processes
Nervous System Diseases
Neuromuscular Diseases
Spinal Cord Diseases
Central Nervous System Diseases
TDP-43 Proteinopathies
Proteostasis Deficiencies
Metabolic Diseases