Management of Patients With Alpha-1 Antitrypsin Deficiency Associated Emphysema
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ClinicalTrials.gov Identifier: NCT00700934
Recruitment Status : Unknown
Verified June 2008 by Assistance Publique - Hôpitaux de Paris. Recruitment status was: Recruiting
The aim of this study is to describe the natural history of patients with alpha-1 antitrypsin associated emphysema and to figure out associated prognostic factors.
Condition or disease
Alpha 1-Antitrypsin DeficiencyEmphysema
All patients who suffer from this disease are followed every 6 months during a 5 years period. FEV1 decline is the primary endpoint. Quality of life assessed using the Saint George's Respiratory Questionary is recorded too.
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