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Lived Experiences of Adolescents in the Treatment Process of Cancer and the Impact on Occupations

This study has been completed.
Information provided by (Responsible Party):
Hackensack University Medical Center Identifier:
First received: April 3, 2007
Last updated: February 1, 2014
Last verified: February 2014
The purpose of this phenomenological study is to discover and illuminate the experiences of adolescents in the treatment process of cancer and the meanings they attach to these experiences, while maintaining their daily routines. The focus area of interest lies in the impact side-effects (psychological and physical) which these treatments may have on an individual's ability to participate with peers, maintain social activities, and be involved in daily occupation(s).

Pediatric Cancer

Study Type: Observational
Study Design: Observational Model: Cohort
Time Perspective: Prospective
Official Title: Lived Experiences of Adolescents in the Treatment Process of Cancer and the Impact of Occupations

Further study details as provided by Hackensack University Medical Center:

Primary Outcome Measures:
  • Lifestyle changes [ Time Frame: 1 month ]
    Participants will be interviewed for observations of disease effect.

Enrollment: 4
Study Start Date: December 2006
Study Completion Date: June 2011
Primary Completion Date: December 2008 (Final data collection date for primary outcome measure)
Detailed Description:

This study will explore the following research questions: 1. How do adolescent patients in the treatment process of cancer perceive and describe their experience of engaging in occupational routines? 2. What effect does the treatment process of cancer have on an adolescent's ability to participate in life situations such as creating and maintaining relationships with family, friends, peers, students, or people with similar backgrounds?

By doing this study, researchers hope to gain information so that occupational therapists can increase the profession's present body of knowledge and better understand these individuals at a transitional period in their lives.


Ages Eligible for Study:   13 Years to 19 Years   (Child, Adult)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Adolescents being treating for cancer and the impact of their lived experience on engagement in occupations and social participation.

Inclusion Criteria:

  • Pediatric cancer patients
  Contacts and Locations
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Please refer to this study by its identifier: NCT00456209

United States, New Jersey
Hackensack University Medical Center
Hackensack, New Jersey, United States, 07601
Sponsors and Collaborators
Hackensack University Medical Center
Principal Investigator: Gary Grimaldi, MA
  More Information

Responsible Party: Hackensack University Medical Center Identifier: NCT00456209     History of Changes
Other Study ID Numbers: 06.02.112
Study First Received: April 3, 2007
Last Updated: February 1, 2014

Keywords provided by Hackensack University Medical Center:
Lived Experiences
Cancer Treatment
Occupations processed this record on May 25, 2017