German Adrenocortical Carcinoma Registry

This study is currently recruiting participants. (see Contacts and Locations)
Verified September 2015 by University of Wuerzburg
Deutsche Krebshilfe e.V., Bonn (Germany)
Information provided by (Responsible Party):
Martin Fassnacht, University of Wuerzburg Identifier:
First received: March 28, 2007
Last updated: September 6, 2015
Last verified: September 2015
Basic objective of the German Adrenocortical Carcinoma Registry is to improve the care of patients with adrenocortical cancer. The registration of as many patients as possible helps to collect data for the prognosis and prospects of success regarding different treatment plans. This data will be taken into consideration for planning prospective studies. With this registry, the recruitment of patients for prospective studies will be significantly facilitated. In this way - and in cooperation with networks in other countries (e.g. in Italy and France) - a structure allowing systematic improvement of therapy will be developed.

Adrenocortical Carcinoma

Study Type: Observational
Study Design: Observational Model: Cohort
Time Perspective: Prospective
Official Title: Deutsches Nebennieren-Karzinom-Register - German Adrenocortical Carcinoma Registry

Resource links provided by NLM:

Further study details as provided by University of Wuerzburg:

Estimated Enrollment: 1000
Study Start Date: January 2003
Estimated Study Completion Date: December 2025
Estimated Primary Completion Date: December 2023 (Final data collection date for primary outcome measure)
Adrenocortical carcinoma
Adrenocortical carcinoma


Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Adrenocortical carcinoma patients in Germany (or treated in Germany)

Inclusion Criteria:

  • Histologically confirmed diagnosis of adrenocortical carcinoma
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its identifier: NCT00453674

Contact: Martin Fassnacht, MD 49-931-201-36507
Contact: Michaela Haaf

University of Wuerzburg Recruiting
Wuerzburg, Germany, 97080
Contact: Martin Fassnacht, MD   
Sponsors and Collaborators
University of Wuerzburg
Deutsche Krebshilfe e.V., Bonn (Germany)
Principal Investigator: Martin Fassnacht, MD University of Wuerzburg
  More Information

Additional Information:

Responsible Party: Martin Fassnacht, Head of Endocrinology, University of Wuerzburg Identifier: NCT00453674     History of Changes
Other Study ID Numbers: Wue-ACC-R-86-03
Study First Received: March 28, 2007
Last Updated: September 6, 2015
Health Authority: Germany: Ethics Commission

Keywords provided by University of Wuerzburg:
Adrenal cancer

Additional relevant MeSH terms:
Adrenal Gland Neoplasms
Adrenocortical Carcinoma
Adrenal Cortex Diseases
Adrenal Cortex Neoplasms
Adrenal Gland Diseases
Endocrine Gland Neoplasms
Endocrine System Diseases
Neoplasms by Histologic Type
Neoplasms by Site
Neoplasms, Glandular and Epithelial processed this record on November 27, 2015