German Adrenocortical Carcinoma Registry

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details. Identifier: NCT00453674
Recruitment Status : Recruiting
First Posted : March 29, 2007
Last Update Posted : November 1, 2016
Deutsche Krebshilfe e.V., Bonn (Germany)
Information provided by (Responsible Party):
Martin Fassnacht, University of Wuerzburg

Brief Summary:
Basic objective of the German Adrenocortical Carcinoma Registry is to improve the care of patients with adrenocortical cancer. The registration of as many patients as possible helps to collect data for the prognosis and prospects of success regarding different treatment plans. This data will be taken into consideration for planning prospective studies. With this registry, the recruitment of patients for prospective studies will be significantly facilitated. In this way - and in cooperation with networks in other countries (e.g. in Italy and France) - a structure allowing systematic improvement of therapy will be developed.

Condition or disease
Adrenocortical Carcinoma

Study Type : Observational
Estimated Enrollment : 1000 participants
Observational Model: Cohort
Time Perspective: Prospective
Official Title: Deutsches Nebennieren-Karzinom-Register - German Adrenocortical Carcinoma Registry
Study Start Date : January 2003
Estimated Primary Completion Date : December 2023
Estimated Study Completion Date : December 2025

Resource links provided by the National Library of Medicine

U.S. FDA Resources

Adrenocortical carcinoma
Adrenocortical carcinoma

Information from the National Library of Medicine

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Ages Eligible for Study:   Child, Adult, Senior
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Adrenocortical carcinoma patients in Germany (or treated in Germany)

Inclusion Criteria:

  • Histologically confirmed diagnosis of adrenocortical carcinoma

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its identifier (NCT number): NCT00453674

Contact: Martin Fassnacht, MD 49-931-201-36507
Contact: Michaela Haaf

University of Wuerzburg Recruiting
Wuerzburg, Germany, 97080
Contact: Martin Fassnacht, MD   
Sponsors and Collaborators
University of Wuerzburg
Deutsche Krebshilfe e.V., Bonn (Germany)
Principal Investigator: Martin Fassnacht, MD University of Wuerzburg

Additional Information:
Publications of Results:

Responsible Party: Martin Fassnacht, Head of Endocrinology, University of Wuerzburg Identifier: NCT00453674     History of Changes
Other Study ID Numbers: Wue-ACC-R-86-03
First Posted: March 29, 2007    Key Record Dates
Last Update Posted: November 1, 2016
Last Verified: October 2016

Keywords provided by Martin Fassnacht, University of Wuerzburg:
Adrenal cancer

Additional relevant MeSH terms:
Adrenocortical Carcinoma
Neoplasms, Glandular and Epithelial
Neoplasms by Histologic Type
Adrenal Cortex Neoplasms
Adrenal Gland Neoplasms
Endocrine Gland Neoplasms
Neoplasms by Site
Adrenal Cortex Diseases
Adrenal Gland Diseases
Endocrine System Diseases