Autism in Adult Patients and the Effects on Caregivers
Recruitment status was: Not yet recruiting
Background: The number of adults with autism is expected to rise significantly in the near future, due to two main reasons: First, a dramatic increase in the estimates of the prevalence of autism starting in the mid 1980s; Second, the clinical diagnosis of autism was first introduced during the 1950s, and those diagnosed with autism back then are only now entering middle age. Few studies, however, have focused on the outcomes of adult autistic individuals, and very little is known about the course of autism in adulthood and on the familial burden resulting from caring for an autistic adult. We therefore propose to study adult outcomes in autism, and to examine the influence of raising an autistic individual on the parents.
Working hypothesis and aims: The primary objectives of the study are:
- Determine clinical status and functioning of autistic adults.
- Study the influence of raising and caring for an individual with autism on the well-being of the parents.
|Study Design:||Observational Model: Cohort
Time Perspective: Prospective
|Official Title:||Autism: Long Term Course and Impact|
Please refer to this study by its ClinicalTrials.gov identifier: NCT00367107
|Sheba Medical Center|
|Tel Hashomer, Israel|
|Principal Investigator:||Raz Gros, MD||Mental Health Epidemiology & Psychosocial Aspects of Illness, The Gertner Institute for Epidemiology and Health Policy Research|