Genetic Counselors' Experiences of Moral Value Conflicts With Clients

The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details. Identifier: NCT00360711
Recruitment Status : Completed
First Posted : August 7, 2006
Last Update Posted : July 2, 2017
Information provided by:
National Institutes of Health Clinical Center (CC)

Brief Summary:

This study will examine the experience of moral value conflicts among genetic counselors. Previous research has shown that value conflicts do exist among genetic counselors, but little is known about the nature or consequences of these conflicts. This is a sub-study of the "Manifestations and Consequences of Moral Distress Among Genetic Service Providers: An Exploratory Study," which includes genetic counselors, nurses and medical geneticists.

Genetic counselors are recruited for this value-conflict sub-study from among those participating in the Moral Distress study. Participants are interviewed in-depth by telephone about their experiences of moral value conflicts with clients. The interviews cover the following: situations in which the counselor has disagreed with a client's decision or views on a moral level; the counselor's thought processes during and after a session in which conflicts arise; the counselor's feelings and emotions associated with sessions involving a moral value conflict; the counselor's current and previous work settings; the counselor's view of his or her role and responsibility in a client's decision; challenging a client's values or decision; and preparation for value conflicts.

Condition or disease
Moral Value Conflicts Moral Distress Genetic Counseling

Detailed Description:
Genetic counselors may be faced with situations in which they disagree on a moral level with the views or decisions of their clients. These moral value conflicts between counselors and their clients may have negative emotional consequences for counselors. Little is known about the range of sources of these conflicts, the approaches counselors take to address them, or the impact they have on the counselor's life and career. This study seeks to gain insight into the nature, sources, and consequences of moral value conflicts among genetic counselors through semi-structured in-depth interviews with approximately 30 genetic counselors. Interview questions will be nested within interviews for a larger study entitled "Moral Distress and Suffering of Genetics Professionals". The discussion will be centered on a personal experience of moral value conflict that the counselor has had with a client. Interviews will be transcribed and subjected to thematic analysis. Such analysis will result in the identification of common themes running through the interviews. An understanding of value conflicts may allow for future interventions to minimize the negative effects of these events.

Study Type : Observational
Enrollment : 0 participants
Official Title: Genetic Counselors' Experiences of Moral Value Conflicts With Clients
Study Start Date : June 1, 2006
Study Completion Date : March 31, 2007

Information from the National Library of Medicine

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Ages Eligible for Study:   Child, Adult, Senior
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No

A sample of approximately 30 genetic counselors will be interviewed for this study.

Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its identifier (NCT number): NCT00360711

United States, Maryland
Johns Hopkins University School of Medicine
Baltimore, Maryland, United States, 21205
Sponsors and Collaborators
National Human Genome Research Institute (NHGRI)

Publications: Identifier: NCT00360711     History of Changes
Other Study ID Numbers: 999906179
First Posted: August 7, 2006    Key Record Dates
Last Update Posted: July 2, 2017
Last Verified: March 31, 2007

Keywords provided by National Institutes of Health Clinical Center (CC):
Moral Distress
Ethical Dilemma