Establishing an Inflammatory Breast Cancer Registry
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|ClinicalTrials.gov Identifier: NCT00340158|
Recruitment Status : Completed
First Posted : June 21, 2006
Last Update Posted : April 23, 2010
Inflammatory breast carcinoma (IBC) is an extremely rare, aggressive form of breast cancer that disproportionately impacts young women. IBC often affects the skin of the breast, as well as the breast itself, making it appear inflamed. The purpose of this study is to collect data and information on IBC patients so that researchers can study factors associated with IBC. The data and information collected will be used to establish the IBC Registry, a private cancer registry.
Approximately 300 persons who are 18 years or older and who have been diagnosed with IBC will participate in this study. Participants will provide researchers with access to their medical and pathology records, slides, tissue, and x-rays. They also will consent to a 15-minute telephone interview concerning general information about themselves and the initial manifestation of IBC and to a 30-minute interview about their medical history.
|Condition or disease|
|Inflammatory Breast Cancer|
|Study Type :||Observational|
|Estimated Enrollment :||164 participants|
|Official Title:||The Establishment of an Inflammatory Breast Cancer Registry and Biospecimen Repository|
|Study Start Date :||June 2003|
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00340158
|United States, Maryland|
|National Cancer Institute (NCI), 9000 Rockville Pike|
|Bethesda, Maryland, United States, 20892|