Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org
|The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Read our disclaimer for details.|
|ClinicalTrials.gov Identifier: NCT00302198|
Recruitment Status : Completed
First Posted : March 14, 2006
Last Update Posted : March 2, 2010
|Condition or disease||Intervention/treatment|
|Amyotrophic Lateral Sclerosis||Behavioral: ALS Registry|
Any person who has been diagnosed with ALS by a physician can enroll into this registry.
The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.
|Study Type :||Observational|
|Estimated Enrollment :||15000 participants|
|Official Title:||Amyotrophic Lateral Sclerosis Web Based Patient Care Database|
|Study Start Date :||January 2006|
|Primary Completion Date :||February 2010|
|Study Completion Date :||February 2010|
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00302198
|United States, California|
|Forbes Norris MDA/ALS Center|
|San Francisco, California, United States, 94115|
|Principal Investigator:||Robert G Miller, MD||California Pacific Medical Center|