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UPMC Simmons Center for Interstitial Lung Disease Pennsylvania Statewide Research Registry (ILDRR)

This study is currently recruiting participants.
Verified July 2017 by Kevin F. Gibson, University of Pittsburgh
Sponsor:
ClinicalTrials.gov Identifier:
NCT00258583
First Posted: November 24, 2005
Last Update Posted: July 25, 2017
The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.
Information provided by (Responsible Party):
Kevin F. Gibson, University of Pittsburgh
  Purpose
The purpose of this study is to place past, current, and future medical record information into the UPMC Simmons Center for Interstitial Lung Disease Research Registry.

Condition
Lung Diseases, Interstitial

Study Type: Observational
Study Design: Observational Model: Cohort
Time Perspective: Other
Official Title: UPMC Simmons Center for Interstitial Lung Disease Pennsylvania Statewide Research Registry

Resource links provided by NLM:


Further study details as provided by Kevin F. Gibson, University of Pittsburgh:

Estimated Enrollment: 5000
Study Start Date: October 2003
Estimated Study Completion Date: July 2020
Estimated Primary Completion Date: July 2020 (Final data collection date for primary outcome measure)
Detailed Description:
This study gives participant's permission to allow the staff at the Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease to to place past, current, and future medical record information into a UPMC Simmons Center for Interstitial Lung Disease Research Registry. By placing the medical record information of many patients into a research registry, researchers will be able to conduct research studies directed at increasing our knowledge about interstitial lung disease. It is anticipated that the research registry will assist out investigators by allowing researchers to review and study the medical records of many individuals to answer questions about interstitial lung disease and its treatment. In addition, it will help researchers identify and recruit patients for participation in future research studies.
  Eligibility

Information from the National Library of Medicine

Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. For general information, Learn About Clinical Studies.


Ages Eligible for Study:   18 Years and older   (Adult, Senior)
Sexes Eligible for Study:   All
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population
Study population can be described as any adult being seen by a physician at the Simmons Center for interstitial lung disease who has been diagnosed with an Interstitial Lung Disease.
Criteria

Inclusion Criteria:

  • Adult patients who are seeking treatment at the UPMC Simmons Center for Interstitial Lung Disease
  • 18 years of age or older

Exclusion Criteria:

  Contacts and Locations
Information from the National Library of Medicine

To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00258583


Contacts
Contact: Melinda J Klesen, BA 412-802-6860 ext 26860 klesenmj@upmc.edu
Contact: Kirkpatrick Morgan, BS 412-692-2151 ext 22151 kirkpatrickml@upmc.edu

Locations
United States, Pennsylvania
University of Pittsburgh Recruiting
Pittsburgh, Pennsylvania, United States, 15213
Contact: Melinda J Klesen, BA    412-802-6860 ext 26860    klesenmj@upmc.edu   
Contact: Morgan Kirkpatrick, BS    412-692-2151 ext 22151    kirkpatrickml@upmc.edu   
Sub-Investigator: Rajiv Dhir, MD         
Principal Investigator: Kevin Gibson, MD         
Sub-Investigator: Kathleen Lindell, MSN, PhD, RN         
Sub-Investigator: Luis A Ortiz, MD         
Sub-Investigator: Melinda J Klesen, BA         
Sub-Investigator: Michelle F MacPherson, BS, MAT         
Sub-Investigator: Kristen Veraldi, M.D.         
Sub-Investigator: Michelle Meyers, BSN, RN         
Sub-Investigator: Morgan Kirkpatrick, BS         
Sub-Investigator: Mauricio Rojas, MD         
Sub-Investigator: Samuel Yousem, MD         
Sub-Investigator: Frank Schneider, MD         
Sub-Investigator: Joo Hueng Yoon, MD         
Sub-Investigator: Yingze Zhang, PhD         
Sub-Investigator: Danny J Kass, MD         
Sponsors and Collaborators
University of Pittsburgh
Investigators
Principal Investigator: Kevin F Gibson, MD University of Pittsburgh - UPMC Simmons Center for Interstitial Lung Disease
  More Information

Additional Information:
Responsible Party: Kevin F. Gibson, Professor of Medicine, University of Pittsburgh
ClinicalTrials.gov Identifier: NCT00258583     History of Changes
Other Study ID Numbers: 0307127
First Submitted: November 23, 2005
First Posted: November 24, 2005
Last Update Posted: July 25, 2017
Last Verified: July 2017

Keywords provided by Kevin F. Gibson, University of Pittsburgh:
"Lung[A04.400]"

Additional relevant MeSH terms:
Lung Diseases
Lung Diseases, Interstitial
Respiratory Tract Diseases