Case Notes Review on Patients With Hereditary Haemorrhagic Telangiectasia

The recruitment status of this study is unknown because the information has not been verified recently.
Verified August 2008 by Imperial College London.
Recruitment status was  Recruiting
The Margaret Hayton HHT Fund
Information provided by:
Imperial College London Identifier:
First received: September 29, 2005
Last updated: August 12, 2008
Last verified: August 2008

The Hammersmith Hospital provides a clinical service for patients with Hereditary haemorrhagic telangiectasia and pulmonary arteriovenous malformations that is unique in the United Kingdom. Measurements obtained as part of standard clinical practice that has evolved since 1985 allow us to assess whether particular groups of individuals that we see are more prone to recognised complications such as strokes, brain abscesses, pregnancy related complications or pulmonary hypertension. We hypothesise that certain clinical characteristics will predict the susceptibility of individuals to particular complications.

Telangiectasia, Hereditary Hemorrhagic

Study Type: Observational
Official Title: Hammersmith Hospital Patients With Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Haemorrhagic Telangiectasia

Resource links provided by NLM:

Further study details as provided by Imperial College London:

Estimated Enrollment: 500
Study Start Date: January 2000

Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No

Inclusion Criteria:

  • Patients attending Hammersmith Hospital

Exclusion Criteria:

  • None
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its identifier: NCT00230685

Contact: Claire L Shovlin 0208 383 1000

United Kingdom
Respiratory Medicine, Hammersmith Hospital Recruiting
London, United Kingdom, W12 0NN
Contact: Claire L Shovlin   
Principal Investigator: Claire L Shovlin         
Sponsors and Collaborators
Imperial College London
The Margaret Hayton HHT Fund
Principal Investigator: Claire L Shovlin Imperial College London
  More Information

No publications provided by Imperial College London

Additional publications automatically indexed to this study by Identifier (NCT Number): Identifier: NCT00230685     History of Changes
Other Study ID Numbers: IC/CLS2
Study First Received: September 29, 2005
Last Updated: August 12, 2008
Health Authority: United Kingdom: Research Ethics Committee

Keywords provided by Imperial College London:
Pulmonary arteriovenous malformations

Additional relevant MeSH terms:
Arteriovenous Fistula
Arteriovenous Malformations
Cardiovascular Abnormalities
Congenital Abnormalities
Vascular Malformations
Telangiectasia, Hereditary Hemorrhagic
Cardiovascular Diseases
Hematologic Diseases
Hemorrhagic Disorders
Hemostatic Disorders
Pathological Conditions, Anatomical
Vascular Diseases
Vascular Fistula processed this record on May 21, 2015