Parkinson's Disease Registry of the Muhammad Ali Parkinson Center
This study is ongoing, but not recruiting participants.
Sponsor:
Muhammad Ali Parkinson Research Center
Collaborator:
Barrow Neurological Foundation
Information provided by:
Muhammad Ali Parkinson Research Center
ClinicalTrials.gov Identifier:
NCT00217321
First received: September 15, 2005
Last updated: July 20, 2010
Last verified: September 2006
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Purpose
The purpose of the Parkinson's disease Registry is to develop a national and international database of persons with Parkinson's disease (PD). The Registry will be used to facilitate the development of new therapies and healthcare services to improve the quality of life for people with PD. It will also be a means for investigators in the field of PD to quickly identify and notify subjects about other research studies for which they are eligible.
Objectives include:
- Assess current treatment approaches and develop best-practice guidelines
- Track the functional abilities, access to healthcare and cost of illness of people with PD over time
- Drive the development of innovative research projects
- Accelerate the process of informing patients of research projects for which they may be eligible
| Condition |
|---|
|
Parkinson's Disease |
| Study Type: | Observational |
| Study Design: | Observational Model: Ecologic or Community Time Perspective: Prospective |
| Official Title: | Parkinson's Disease Registry |
Resource links provided by NLM:
Further study details as provided by Muhammad Ali Parkinson Research Center:
| Estimated Enrollment: | 20000 |
| Study Start Date: | November 2003 |
| Estimated Study Completion Date: | December 2015 |
What do you need to know?
- Any individual diagnosed with PD is eligible to enroll.
- Participation in the registry is voluntary, confidential and free of charge.
- Eligible participants will be notified about opportunities to participate in clinical trials, though they are under no obligation to enter.
- Participants will need to complete an updated questionnaire every six months.
- Participants may also be asked to complete additional surveys for PD research projects.
- Any data provided will be used in scientific publications in summary form only.
- Participant names will not be released to anyone outside the Parkinson's disease Registry management team without written authorization, nor will names be sold for advertising or fund-raising purposes.
Eligibility| Genders Eligible for Study: | Both |
| Accepts Healthy Volunteers: | No |
| Sampling Method: | Non-Probability Sample |
Study Population
Participants must be over 18 years old, have idiopathic Parkinson's disease diagnosed by a physician.
Criteria
Inclusion Criteria:
- Clinical diagnosis of Parkinson's disease
Exclusion Criteria:
- No clinical diagnosis of Parkinson's disease
Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study.
To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below.
For general information, see Learn About Clinical Studies.
Please refer to this study by its ClinicalTrials.gov identifier: NCT00217321
Please refer to this study by its ClinicalTrials.gov identifier: NCT00217321
Locations
| United States, Arizona | |
| Muhammad Ali Parkinson Research Center | |
| Phoenix, Arizona, United States, 85013 | |
Sponsors and Collaborators
Muhammad Ali Parkinson Research Center
Barrow Neurological Foundation
Investigators
| Principal Investigator: | Abraham Lieberman, MD | MAPC |
More Information
No publications provided
| Responsible Party: | Patty Hatton, CTRS/Coordinator, Barrow Neurological Institute |
| ClinicalTrials.gov Identifier: | NCT00217321 History of Changes |
| Other Study ID Numbers: | 03BN117 |
| Study First Received: | September 15, 2005 |
| Last Updated: | July 20, 2010 |
| Health Authority: | United States: Institutional Review Board |
Keywords provided by Muhammad Ali Parkinson Research Center:
|
Parkinson's disease Parkinson disease Registry quality of life database |
Additional relevant MeSH terms:
|
Parkinson Disease Basal Ganglia Diseases Brain Diseases Central Nervous System Diseases |
Movement Disorders Nervous System Diseases Neurodegenerative Diseases Parkinsonian Disorders |
ClinicalTrials.gov processed this record on March 02, 2015