Establishment of a Database for Long-Term Monitoring of Patients With Nephropathic Cystinosis
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|ClinicalTrials.gov Identifier: NCT00004312|
Recruitment Status : Completed
First Posted : October 19, 1999
Last Update Posted : June 24, 2005
OBJECTIVES: I. Establish a computerized databank to monitor the progress of patients with cystinosis treated with cysteamine.
II. Track and monitor all patients including renal transplant, dialysis and post renal transplants.
|Condition or disease|
Data are collected from patients and physicians. Information includes disease, treatment, family history, demographic, and physical exam data. The dates of kidney transplantation and/or dialysis initiation are also recorded.
|Study Type :||Observational|
|Estimated Enrollment :||400 participants|
|Study Start Date :||October 1999|
To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.
Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT00004312
|United States, California|
|University of California San Diego School of Medicine|
|La Jolla, California, United States, 92093-0652|
|Study Chair:||Jerry A. Schneider||University of California, San Diego|